Hi all.......I am back after swearing I would not be. My follow up EMG has left me stumped and scared.
Just a refresher....over the past 8 months I have had a normal/unremarkable EMG on my lover and upper limbs. Clinical tests were all excellent. NCS stated Axonal Sensorimotor...
In the morning I get a lot of clear mucus which comes out of my nose. I have trouble blowing my nose because of weakness. We have a baby nose sucker-upper, but it's useless and doesn't work. So I had this bright idea that maybe I can use my saliva suction machine on my nose mucus. Is this a...
Hi
I am now experiencing a variation in existing symptoms and new symptoms.
The initial twitching from May 2015 has pretty much disappeared, unless I have really exerted myself during the day. Any muscle I use fatigues much more quickly.
I am a seasoned singer and my speaking voice (despite...
Hi all,
I would like to first start off by saying that our thoughts and prayers are with you. In the past couple of months, I have been increasingly worried about my condition. I understand that I'm 19 and that ALS is extremely, extremely unlikely in my case, but my symptoms are starting to...
Good morning,
I would like to know if any of you have used respite care for your PALS with FTD? I know that with our Hospice care that they allow a few days respite at our little hospital. I also know that our hospital and its staff have never cared for an ALS patient let alone one with FTD...
Hello. I am writing this as a last resort and I apologize for being so long. I have convinced myself that I have ALS and am hoping you can convince me otherwise.
I went to the doctors in August with tingling in my feet, post nasal drip with no runny nose, pain on my right rib cage, back ache...
I'm planning an operation or insertion in January.
I understand the basic dynamics of both. However, is there anybody on the forum that has experience with a heavy mucus flow during the use of said device(s). My concern is that the 'baloon' is far enough down the trachea that mucus can...
Hi everyone. First, thank you so much for this forum! I've been reading a lot in the last several days and now feel ready to ask some questions. Forgive the lengthy backstory, but I feel like it might be important.
My 72 yo father-in-law began having difficulty swallowing followed by...
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symptoms?
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Started 6 months ago during April or early May; I was laying on the couch and my right ankle started twitching. I didn't mind it till it kept happening and spread to my calf. Went on Google and found ALS. Watched videos and documented stories from people of how they first experienced ALS.
This...
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symptoms?
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My mom went in to get her PEG today. She didn't really want it, but she said okay. I'm not really sure why.
Actually, I know why. After being in denial for so long, she now will do mostly everything I suggest. It's a terrifying responsibility.
I wanted her to get it because I am not ready for...