movement

  1. B

    Update on my visit to my sister and a new question

    I posted over a month ago and got very helpful advice. I wanted to thank all who replied once again. I spent a wonderful week with my sister. I have to admit there were tears but there was also a lot of laughter. My sister's spirits lifted and we went out for a walk every day to her favorite...
  2. L

    Loss of muscle tone & twitching

    Hello all......I am in a state of panic right now and hope someone can help me. To start....I am a very active person and have always been very toned and am 51 years old. I am a petite woman 5'3" and 125 pounds. The last couple years I have noticed my thighs and calves seem loose when totally...
  3. A

    Seeking communication support for special friend

    A special friend (David) of mine and my husbands is a 17-year survivor of ALS. David currently has a Tobii Dynavox I-15 (with eye gaze interaction – AAC device) speech generating device. His AAC device is calibrated to his eyes. David was able to communicate (with his wife and family, also with...
  4. S

    Young and really scared

    Hello everyone, First I wanted to say that I do not mean to offend anyone but I am in a scared limbo situation.Ok,I am an 18 year old male and my first symptom was 2 years ago. My right leg felt weak and I was walking weird but then it went away.However, when time was passing by I noticed...
  5. dkcarl62

    pain with bowel movement

    Does anyone experience a burning pain during a bowel movement? There is no blood, no hemorrhoids that I know of. Just trying to determine if this is part of MND or something else. Thanks, Deb
  6. A

    Still curious

    Hi I had posted last week about being curious about my symptoms. I have had several people tell me that I do not show symptoms of als but I am still full of doubt. My twitches are still there but there are longer periods of time that I don’t feel them for the passed week I suppose. The fear i...
  7. A

    6 months in. Symptoms progressing. Doctors perplexed

    Hi all. Brief recap: Sept 2017 - ring finger twitch/tremor starts Oct 2017 - spread to other fingers Nov 2017 - unremarkable EMG Dec 2017- tremor spreads to other hand Feb 2018 - repeat EMG unremarkable in hands and arms, but “irregular” in face and leg...yet somehow simultaneously...
  8. L

    Question on bowel movement

    Sorry for the title, but my PALS is saying she is having difficulty. This is not a constipation issue, but muscle weakness. Can anyone offer any ideas or suggestions? We are in our RV right now, won't be home for another week and next clinic is not til May. Any help appreciated.
  9. E

    Lip tremors tired tongue

    To begin with, I have seen a neuro. I have diagnosed IIH (high intracranial pressure) and already had a follow up appointment where I mentioned these new symptoms. I am awaiting CPK levels. About 1 week ago my lip froze. I couldn't move it - it was just my upper lip and it drooped down and...
  10. S

    Am I developing Also with symptoms increasing?

    Hi all, I know you get a lot of hypochondriacs here claiming they have ALS and I hope I am not wasting anyone's time. When I have browsed forums about people asking do they have ALS many talk about symptoms coming and going and as I know ALS worsens over time and does not get better or do you...
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