This is so hard right now. Not sure if it's from medications or the disease but Jesse has become paranoid and delusional. He wouldn't let me give him a suppository yesterday because I "didn't do it right" and insisted I call Hospice nurse to do it although I had done it many times. When she was...
I just heard from my brother that my father thought his bipap wasn't working properly. Turns out it was anxiety and hospice has now told him to increase the usage (he is currently using about 75% of the day), take ativan and take morphine 4 times/day.
I am planning to go next Saturday as of...
How do you know when it's time to take a leave of absence from work to be there?
Since my return from visiting my parents two weeks ago I've gotten updates that my father's breathing is getting worse, he's using the bipap a lot more, and has stopped going out.
Hospice started on Tuesday and...
I copied some statements (below) about life expectancy. Here’s what I think I know from the doctors and from helping my wife as she progressed:
In ALS, death usually comes from impaired breathing, especially aspiration pneumonia due to swallowing problems. If the patient lives long enough...
ability
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alsa
bipap
breathing
bulbar
bulbar onset
death
diagnosis
early
familial
familial als
increase
morphine
muscles
nutrition
onset
peg
person with als
pneumonia
respiratory
riluzole
statistics
stats
swallowing
symptoms
tracheostomy
young
Raymond has had a turn for the worse, second day back and work and I got a frantic call from our son that Raymond woke up and was disoriented and confused, didn't know where he was or what was going on. I rushed home, called hospice nurse, and found that he was a little more lucid, but still...
My sweet Tom went to be with our Lord on Tuesday. His diaphragm couldn't hold up to an infection somewhere in his upper respiratory system. The doctors couldn't pinpoint it (lungs were clear) but they are thinking he had aspiration pneumonia in the deep recesses of his lungs. He suffered...
My PALS was diagnosed with limb onset als in early 2013. Since last fall she has only been able to lay on her back without moving. Because of this she now has pain in her joints and is in hospice care. First we tried morphine but that didn't cut the pain. Now we are bumping up her methadone to...
Hello- I am new at posting but I have been following along for quite some time. My wife was diagnosed two and a half years ago so I have had the same ups and downs all of us caregivers have had. So far I have been holding my own but today has been a turning point. She is now on home hospice...
Hi all,
I've posted a few of my concerns about my Dad, and I thank you all for reading and responding.
This new issue is quite awful. My dad was diagnosed with ALS in August 2014. He seemed to have "a light case" at that time, but has since developed quite a bit of difficulty breathing. He...
als
back
bipap
breathing
chair
dad
diagnosed
driving
feeding
feeding tube
hospice
modifications
morphine
pain
ramp
reading
tracheotomy
van
wheelchair
wheelchair van
wheelchairs