I don't mean to be morose, but this is something I know only bits and pieces about. Not to offend anyone, but my greatest fear is losing control of my extremities and not being able to move. I want to die of respiratory failure long before that time comes. My respiration three weeks ago was...
According to my Neurologist, I am progressing fast. I was officially diagnosed with a second opinion on June 8th. I turn 65 in November, have a wonderful husband, two adult children four grandchildren, and excellent friends. I have had a good life; however, I do not want to continue living this...
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I had in the past mentioned that Alka-Seltzer had all but removed my Phlegm issues. This continues to be true and I highly recommend it. It was unbearable before I started the daily regiment and now is virtually unnoticeable. A note on this is that it does not work instantly it seems to take a...
Can someone help please? My pal is struggling with his breathing more and more. His neurologist said that he could just choose to use his vpap machine more and more or he could take morphine and keep his use of the vpap machine to evenings and his 4 hour rest during the day.
We are hesitant to...
[I'm posting this again without my original closing sentence that someone thought was religious. I'm not religious, and nothing religious was expressed in my post or in any replies before the post was removed. But I guess there's no use quibbling with a censorious site moderator who thinks I...
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From the first mention of ALS, I believed my wife would not want to live locked in, and it came as no surprise that when she prepared her advance directive, she wrote that she did not want anything done or omitted by her doctors or nurses with the intention of taking her life, but that she...
Hello.
I've lurked here on the forum since my mother's initial diagnosis in early January. That initial diagnosis was followed by a confirmation at our local ALS Clinic three weeks later. My mother has had significant health problems since 2002, so while she experienced symptoms for many...
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This is going to be a long post but I'm so terrified and I need guidance. I will start from the beginning.
3 years ago my dad ended up with foot drop, CT scan also showed pinched nerves in his back, he had back surgery and began walking with a brace. 6 Months later he fell at work and broke his...
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My last thread closed so just a quick recap ( from 6 weeks ago) I added daytime issues
I don't breathe well enough on my back when I wake up so I have to roll on my side where it's much easier (but uncomfortable)
My last FVC was 33% August 2015 (local dr is chasing the new test up this week...
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Two weeks ago I emailed and asked my ALS nurse to call me. When she did I told her that my headaches had returned and that doing even the smallest things left me out of breath and exhausted. I had been to the clinic two weeks prior to our phone call.
She recommended that we once again have my...