morphine

  1. N

    My Dad has progressive bulbar Palsy

    Hi everyone, I wrote a couple of posts back in May after Dad's initial diagnosis but havent wrote anything since. Im having a bad day today so im hoping it might help. As I said my 63 year old Dad was diagnosed with MND in May but its only recently that it has been confirmed that he has...
  2. N

    My Father

    Hi All, My father passed away on 8th Aug 2017 from ALS. I am writing this for others who may find our experience helpful. We live in Mumbai, India. My father showed symptoms for ALS since Feb 2016. Initial symptoms included weight loss, weakness, lethargy (especially in the morning) and...
  3. J

    My love is gone

    Jay passed on August 9th while in hospice at the hospital. His breathing starting getting bad the week before. He never had any trouble breathing until August 1st. My heart breaks that he didn't pass at home where I always told him he would be. But on August 4th I woke up to realize that he...
  4. H

    Pain associated with ALS

    My sister has had ALS for two years and has been under hospice care for the last 9 months. She has just recently started experiencing occasional pain (as evidenced by increased respirations - she can't communicate otherwise), for which she is given morphine. This has only happened a few times...
  5. Erika

    One year ago this crazy ride began....thank you for all the information and support!

    My mom was diagnosed one year ago today. So much has happened and yet, I remember those days leading up to the day and "the" day like it was yesterday.* I had already been told it was likely ALS a week prior, but I only told my parents we were being sent to another doctor who knew more about...
  6. C

    We appear to be nearing the end

    I think we are nearing the end. We have called in hospice and they gave the what they call the standard 'days to weeks'. I guess there's no way of knowing, but the change in the last 24 hours has been dramatic. He has been sleeping most of the time and is difficult to rouse. He's still on...
  7. A

    My pals has had enough!

    It's time! I'm in a state of shock really as here I am sitting beside my man waiting for the dr to arrive to have " the chat". This morning was just all to hard for my man. He can't eat,drink,talk so anyone can understand him and he felt sick as well. He can move just one thumb a bit and maybe a...
  8. Duker52

    Silly question of the day: Suction

    In the morning I get a lot of clear mucus which comes out of my nose. I have trouble blowing my nose because of weakness. We have a baby nose sucker-upper, but it's useless and doesn't work. So I had this bright idea that maybe I can use my saliva suction machine on my nose mucus. Is this a...
  9. D

    Mom with ALS

    My mom was diagnosed with ALS in November of 2015. In October of this year we did the ALS walk here in Sacramento. Mom was able to go with the help of a scooter. But since then she has gone downhill. We have had her in respite care twice. This last time we wanted to be able to leave her...
  10. KatieNBoyd

    Respite care

    Good morning, I would like to know if any of you have used respite care for your PALS with FTD? I know that with our Hospice care that they allow a few days respite at our little hospital. I also know that our hospital and its staff have never cared for an ALS patient let alone one with FTD...
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