money

  1. L

    Panicking...how do I do this?

    Hello I am new here so Im grateful to anyone who takes the time to respond. I am not yet a caregiver but will be here soon. My mom has ALS or PLS the doctors cant seem to decide. It is progressing wildly. She is in a wheelchair, has lost fine motor control in her hands and is having trouble...
  2. jethro

    Software companies, do they donate?

    we saw bill gates in ice bucket challange, nominated by zuckenberg. with just 10% of money they have, they can find a cure. have no info - did they donated? nothing is a such a problem but money...
  3. A

    Wish I never watched ALS videos but....

    Hello - I am a 38 year old male 6'0 173 lbs Medication: Adderall, Zoloft, Kratom I been noticing lately that I get very tired when walking up hills or stairs. After the second flight my thighs really start to burn. I am not out of shape but I also don't work out regularly. I have about 2...
  4. D

    Recommendation for best neuromuscular/ALS neurologist in Europe

    Dear all, this year I decided that I will get a diagnosis of something no matter what. I have collected money and need recomendations. Please give me names of best neurologists in Europe. Thank you, kind regards!
  5. T

    Question about life if a cure is ever found.

    It's been a while since I have checked in. Life for my son and myself, as caregivers, is almost unbearable. My PALS is totally paralyzed from neck down. He has a feeding tube and is on a ventilator. He seems a little more depressed lately. Still doesn't sleep well at night so my son and I...
  6. L

    Update to previous thread

    Hello again, my previous thread is now closed but i wanted to make an update as to my current situation. Since my last post I have had an ultra sound of my shoulder which showed inflammation and fluid and was diagnosed with tendinitis and bursitis; I am currently awaiting physiotherapy. My...
  7. mpnatx

    Tipping

    I don't know if I'm in the minority on this. But lately, tipping has begun to really irritate me. It started about 10 years ago when I walked into a restaurant to pickup my phone order. I went to the register, gave my card, and was given the receipt to sign. It had a tip line on it. I...
  8. P

    Advice very much appreciated

    My name is Patrick and I'm a 25 year old male in the UK. I feel quite certain that I have ALS and I was wondering if anyone had any kind advice to offer. Apologies for the long post but I feel like the onset of symptoms has been quite odd and perhaps worth sharing. The story starts six weeks...
  9. N

    The only clean jokes I know - joke 2

    A guy goes to play golf and he asks the person in the pro-shop if he can get on the course and the pro says as a matter of fact there is a three some about to go off I can put you with them. The guy hustles to the first tee. When he gets there the other guys recognize him and ask " hey don't...
  10. Scotiaspirit

    Partnership Treatments

    I was reading about an organization called ALSWORLDWIDE dot org who purports to work with ALS Patients, their families and healthcare providers. One of my local PALS friends has parted with a considerable sum of money, for some of their supplements and treatments. I have read somewhere where...
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