money

  1. S

    Progression in symptoms - need of advice please

    Hello, and first of all, I wish you all the best you can all get for 2019 including love and peace in your souls. I posted here a few weeks ago, as I was concerned with a myriad of Symptomes including feeling of weakness in arm and one leg, beginning of fasciculations, a number of sensory...
  2. K

    Fearing For My Life, Please Help

    Before I say anything I just wanted to say that YES, I have read the stickied “read before you post” I am a 19 year old male. Starting in the beginning of November I began to experience constant twitching in my calves. The twitching is 24/7, it does not stop. The only thing that will change is...
  3. ReginaS

    9 months past diagnosis

    Hi all, My partner was diagnosed w. ALS in February (2018). He might have noticed the first signs in Oct. 2017 in his right foot. He got a leg brace for drop foot. His right arm/had and foot/leg are very weak. Now he has significant pain in his right wrist. I got him a brace and it's best if...
  4. L

    For Sale: Tobii I-12, ResMed AirCurve, Hill-Rom Cough Assist

    I’m selling my dad’s equipment at a good price and will donate the money to our local hospice center. Buy it all or separately. 1. Tobii Dynavox with eye tracking and Windows 10. Comes with Connect It floor mount AND wheelchair mount. Mounts never used; Tobii only used during initial demo...
  5. jethro

    Testing for ALS (?)

    friend of mine, older 10 years, diagnosed is with neuralgic amiotrophy (complete different diagnose, even has it almost the same symptoms). doesn't know what to do with money, so just called her doctor and not knowing what she asks, she asked: "please how can i test for that disease...hm... als...
  6. jethro

    Cryopreservation

    desperate, just like everyone on this forum, i'm trying, trying... bureaucracy, science, time... everything is against us. what knocked me down is one scientist's sentence: "it is terrible to see patients dying faster then mice". time is crucial thing. my body is a weaker on a daily basis. so...
  7. J

    Update, and question

    Hi I was on here at the start of the year to follow up with the results of my EMG in January - this was done at8 or 9 points on the right side, and was what I believe is considered "clean" - it showed fascs at 3 points but nothing else. That was after circa 2.5 years of twitching and lots of...
  8. N

    Dad has ALS

    HELLO every one i want to thank every one who take his time and read this . my name is Najib I'm 28 years from morocco "north Africa" . we found recently that my father has ALS after a year of suffering between doctors and tests . you cant imaging how devastating was that to me and to my family...
  9. T

    Hello everyone- I want to share the end of my story

    Hello everyone. I have posted here before. I would like to post one final time and share the end of my story in hopes that it will help those who come here in future in a similar situation to mine. This will be long, so please don't feel like you need to read it- I am not seeking help, but just...
  10. jethro

    Difference in "laboratory research only" products and products for comercial use

    Difference in "laboratory research only" products and products for comercial use since i am "not eligible" even to live, i guess that I AM eligible to chose how to die and how to spend my money. trial is on: ibudilast as a add-on to rilutek, double-blind, blahblah... decided to do it my way...
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