mnd

  1. G

    Riding South Island NZ on a three-wheeler in early stages MND

    I was diagnosed in March 2022 and am relatively slow progressing. However, I can no longer ride a regular bike as I am scared I will fall off and my muscles are too weak. So I am riding as many of the Great Rides of New Zealand as I can on my electric three-wheeler with pedals and raising...
  2. J

    Please do not be too quick to say NO to possible ALS diagnosis

    About 3-4 years ago I came to this forum and asked the dreaded question "Do I have ALS". I had some fasciculations and cramping in my feet, balance issues, spasticity in both legs and slight speech changes. I was assured by members that my symptoms were NOT symptoms of ALS and I went merrily...
  3. B

    over 6 months of symptoms no answer

    First i would like to thank everyone in this forum for providing there experiance and knowledge, and i hope for a cure soon. would also like to state that i have never had HA and my symptoms did not start with twitching. I won't make this a novel so here goes. Sept. Mild fatigue and felt i...
  4. A

    Looking for recommendations

    Hi everyone, I hoping someone can help me,with advising on a super als/mnd specialist! I live in Melbourne Australia, and I’ve been to quite a few neurologists, but I can’t seem to find anyone one with the title neuromuscular specialist for als/mnd The simple fact is I’ve been having...
  5. C

    Questions about Symptoms/EMG

    Thank you all for taking the time to read my post and I would appreciate any advice or knowledge you can pass on. I have read the "before you post sticky". So this all started the the 1st week in Dec, I woke up 1 morning and had a persistent twitch in my left thigh. It prob went on 4-5 days...
  6. E

    Breathing regular checks

    Hey everyone! Today my father had a breathing exam and, as it has been the case since he is testes, the results were perfect. In the past two years and a half since first measured, there has been no observable decline as measured by any indication of respiratory function. Given these results...
  7. M

    I was finally diagnosed after my father

    This is my previous article link: https://www.alsforums.com/forum/do-i-have-als-als/43074-my-sister-i-have-same-symptoms-same-time-after-my-father-diagnosed.html Hello everyone, I returned after being diagnosed after 6 months of symptoms and tests. My neurologist concluded MND disease after a...
  8. W

    @Nikki J

    Sorry to ask but im a worried mother trying to understand this. ive been researching emg studies and if you look on the emg my sons recruitment patterns are all normal and to my understanding in MND or ALS even in early stages they would be abnormal recruitment patterns? Also same with Duration...
  9. W

    Worried Mother

    Hello my name is kelly and my son posted on these forums a few months ago Twiztid Tragedy was his name. So you know his story well yesterday he had his Follow Up and 2nd EMG and the EMG report says he Has MND as the Primary Dx and The Diffrental Dx is ALS or Multi-Level Radiulapthaies. Is there...
  10. affected

    aussie research leaps

    Some of you know of Neale Daniher who is a bulbar onset PALS and started the Big Freeze to raise awareness and money to fight MND. This is what is happening with the money at the moment...
Back
Top