mnd

Hello all, I never in a million years thought I would be joining a group here, but turns out it is looking like this is the next phase of my life. I started noticing a little weakness in my right leg, especially getting into a vehicle for ie. Also around the same time, I kept wondering if...

low motor neuron disease - what is it? is it actually ALS, version of als, starting of als... often is MND/ALS, but low (no upper!) mnd put in google brings only als.

My family and I have been feeling so desperate and confused the past two weeks. My Dad went to doctor initially with weakness in right hand and some muscle wasting in arm (which we thought was from him favouring his left arm for the past year). Doctor sent him to neurologist and during the...

Hello again, my previous thread is now closed but i wanted to make an update as to my current situation. Since my last post I have had an ultra sound of my shoulder which showed inflammation and fluid and was diagnosed with tendinitis and bursitis; I am currently awaiting physiotherapy. My...

Hi Guys, I just have a simple question about EMG testing in ALS. How long before can the EMG detect ALS before weakness starts? I had one done back in November/December of 2017 and it came out clean. This is purely out of curiosity as it mentions it detects long before weakness sets in.

Hello, I'll preface this by saying that I've had an on-again off-again fear of ALS that began 7 years ago, when I first noticed diffuse muscle twitches across my body and made the mistake of consulting Dr. Google. At that time (7 years ago) I informed myself about the nature of ALS symptoms...

I'm new here and just got the devastating news that my dad may have pls. He had brain and cervical spine mris, nerve conduction test, and emg. Neurologist is guessing pls as nothing else makes sense. He's referring my dad to another neurologist at uc irvine, dr. Mozzafar who has the equipment to...

Hi first time on a forem my sister has MND/ALS. Was 3 years diagnosed last October. Her only remaiing limb that works is her right hand, she has no arm movement just her hand, her fingers are so stiff, she can hardly move them . her breathing is very shallow, we use cough assist machine every...

Anyone else been tested or positive? Curious. I'm positive and Mayo thought certainly a more rare variant of Stiff Person. However, thus far, have not responded to meds. My MND doc at our university thinks PLS. Mayo admitted this week that maybe MND is what it is afterall. But first we try...

Hi everyone, I'm new to the forum but have had ALS / MND for 16 years. I'm interested in creating a meditation group online using Zoom or Skype for those who are unable to leave the house without great difficulty but who would like to meditate with other people. There would be no need to speak...