mnd

  1. V

    Need honest opinions--or tough love!

    I am in need of honest opinions-and maybe a little tough love. First: I have so much respect for the folks battling this disease while also being willing to support and advise others. My gratitude goes out to you. Second: I read the sticky, and I realize I likely don't belong on this forum...
  2. W

    Our Story so far

    Hi everyone, firstly thank you for accepting me in to the forum. I am here to learn a bit more about ALS and to be able to talk to others that are or have gone through this process as it feels such a lonely place to be sometimes. It all started back in May/June 2017 with my partner, who was...
  3. Raja

    ALS+FTD on EDARAVONE for 6months.

    Hi friends, I am 62, from God's own country. Diagnosed with MND-ALS+(FTD??) in March first week, this year. There is no new stories. As usual, my neurologist put me on reluzole, edaravone, methylcobalamin, alpha lipoic acid,pyridoxine hydrochloride,D3, and some other supliments . Ok. I will post...
  4. B

    "Interesting case", "atypical presentation", no official diagnosis.

    "Interesting case", "atypical presentation", no official diagnosis. Good afternoon, and greetings. 32 year old fit female labeled as diagnostic mystery. 10 months ago--twitching all over body. Intense for 2 months, then left side predominated. Severe occipital headache, neck pain, pain in...
  5. M

    Is this bullbar ALS?

    Hi @ All, first I would like to introduce myself. My name is Mike I am 34 years old. I have some worries and questions and really hope that you could help me. So let´s start in 2007. When I was 23 years old, so it means nearly 11 years ago I have started with muscle twitching. In that time...
  6. jethro

    Difference between diagnoses

    Friend, 61 yo, thought that she had als. after examination where everything was ok, she is suffering for a 4 years and finally she got diagnose: code g54.5 - neuralgic amiotrophy. she had all symptoms identical like me, but i'm "right side", she is left side". she doesn't use internet, so i am...
  7. C

    Pending diagnosis

    Hello, My husband is 39 and was told yesterday by the neurologist after his EMG that he has a motor neuron disease but doesn't know which one yet. The neurologist told my husband that the disease could stop with just the weakness he's experiencing only in his left hand, or could get worse, he...
  8. M

    Several Issues, Need advice

    Hi. I am 37 to make who has developed a lot of twitching and muscle pain in the past few months. I herniated a disc in my lower back last December, so I have had lots of sciatic pain/leg and foot numbness and tingling from that. I developed severe anxiety and started having panic attacks this...
  9. P

    MND - in india and some questions

    HI everyone, Just joined the forum about a week ago. my wife was diagnosed with MND about 4 weeks ago . If there are any Indians on this forum do let me know. also if anybody could answer a couple of my questions 1. my wife can swallow food but has trouble swallowing water and small tablets...
  10. R

    ALS MND Symposium - Patient Fellows Program

    For anybody with ALS MND who is interested in the science and can get to Glasgow, the Patient Fellows Program is now open for applications... https://alsmndpatientfellows.wordpress.com/ The fellowship covers symposium fees and hotel and a little misc. Thanks to ALSTDI, RobG for coordinating...
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