Good morning. 32 years old with two young children and pregnant with my third. Undergoing testing for a neurological issue, with ALS as one clinical possibility although I have no been formally or even informally diagnosed yet.
I have life insurance through my employer but no private policy. I...
Hi all,
This is sort of an update post (last post was in the Newly Diagnosed) but I wanted to move my thread to a maybe more appropriate category.
My husband has gotten a second opinion from the chief neurologist at the University of Münster in Germany, where he is from. He was also able to...
arm
cals
cbd
death
depressed
diagnosis
early
family
life
mnd
neurologist
newly diagnosed
nurown
oil
physical therapy
progression
rilutek
second opinion
support
tests
thc
trial
update
wanted
weakness
worried
I posted recently with questions regarding the Permobil F3 (I’m currently borrowing one from my loaner closet and like it so far).
That previous thread is here: https://www.alsforums.com/forum/general-discussion-about-als-mnd/42619-question-you-wheelchair-geeks.html
I did receive a gift of a...
Hey all, hope you’re doing good today. Just to prefise, I’ve calmed down since my last post, and I’m taking the necessary steps to find out what’s wrong with me whether it be anxiety or something else. So I got my EMG today at NMC, by a neurologist that specializes in ALS/MND, so I’m sure it was...
I have a closed thread about atrophy in my gastrocnemius.
Here is my story until now.
May of 2017, tore gastroc. At PT they thought it seemed neurologic and their hypothesis was that the tear was secondary to existing atrophy that I had not noticed. My toe taps on the affected leg were...
atrophy
back
biopsy
brain
chair
denervation
early
emg
healing
hyperreflexia
mnd
mri
muscle
muscle biopsy
muscle wasting
progression
questions
shortness of breath
story
tests
work
Hi ,
male 34 years old, italian (milan).
first of all:
1) sorry for my bad english (I will try to help myself with google translate, anyway you will find many errors in writing in English, sorry)
2) I dont want to be annoying for any of you, I understand very well your sufferings and respect u...
Hello,
I’ve been looking for a part of the forum where I could safely post, I didn’t want to intrude on any of the threads which appear for PALS or CALS only.
It was really just to say that I live only a short distance from the SECC where the above titles conference is taking place in...
To preface — I’ve read the READ FIRST posts, so I hope all details below are relevant.
29 year old, smoker for 8 years.
About 3.5 years ago I noticed minor tightness in my throat that I payed no attention to at first. Over the course of time I became more aware of slightly labored breathing...
als
arm
back
bfs
breathing
bulbar
bulbar onset
clinical
cramping
diet
emg
falling
fingers
hope
mnd
neurologist
onset
progression
quality of life
shortness of breath
sleep
symptoms
test
twitching
unknown
weakness
worry
I realize the answer is wait and see the dx, just wondering if I’m on a common path to a diagnosis that others have experienced? I have extreme left arm weakness (can’t lift), and increasing weakness in other limbs + fasciculations + fatigue. EMG by neuro found “active and chronic denervation”...
als
als clinic
arm
arm weakness
autoimmune
back
brain
candida
clinic
diagnosis
dirty emg
emg
fasciculations
fatigue
lift
mnd
mri
muscles
second opinion
symptoms
weakness
Hi, My father in law Age -73 years diagnosed with Bulbar symptoms in March 2018. He was feeling slight dragging of foot and speech issue for more than a year, but after several doctors visits he was adviced for some voice exercises with reason of 'sound box issue due to age' but after more...