mnd

  1. B

    Questions regarding life insurance

    Good morning. 32 years old with two young children and pregnant with my third. Undergoing testing for a neurological issue, with ALS as one clinical possibility although I have no been formally or even informally diagnosed yet. I have life insurance through my employer but no private policy. I...
  2. C

    Mood changes

    Hi all, This is sort of an update post (last post was in the Newly Diagnosed) but I wanted to move my thread to a maybe more appropriate category. My husband has gotten a second opinion from the chief neurologist at the University of Münster in Germany, where he is from. He was also able to...
  3. KarenNWendyn

    Permobil vs Quantum power wheelchairs

    I posted recently with questions regarding the Permobil F3 (I’m currently borrowing one from my loaner closet and like it so far). That previous thread is here: https://www.alsforums.com/forum/general-discussion-about-als-mnd/42619-question-you-wheelchair-geeks.html I did receive a gift of a...
  4. K

    Got my EMG today

    Hey all, hope you’re doing good today. Just to prefise, I’ve calmed down since my last post, and I’m taking the necessary steps to find out what’s wrong with me whether it be anxiety or something else. So I got my EMG today at NMC, by a neurologist that specializes in ALS/MND, so I’m sure it was...
  5. L

    Progression over a year

    I have a closed thread about atrophy in my gastrocnemius. Here is my story until now. May of 2017, tore gastroc. At PT they thought it seemed neurologic and their hypothesis was that the tear was secondary to existing atrophy that I had not noticed. My toe taps on the affected leg were...
  6. L

    14 years of symptoms (and now scared)

    Hi , male 34 years old, italian (milan). first of all: 1) sorry for my bad english (I will try to help myself with google translate, anyway you will find many errors in writing in English, sorry) 2) I dont want to be annoying for any of you, I understand very well your sufferings and respect u...
  7. N

    MND conference - Glasgow December 7-9

    Hello, I’ve been looking for a part of the forum where I could safely post, I didn’t want to intrude on any of the threads which appear for PALS or CALS only. It was really just to say that I live only a short distance from the SECC where the above titles conference is taking place in...
  8. B

    Revisiting the Neurologist

    To preface — I’ve read the READ FIRST posts, so I hope all details below are relevant. 29 year old, smoker for 8 years. About 3.5 years ago I noticed minor tightness in my throat that I payed no attention to at first. Over the course of time I became more aware of slightly labored breathing...
  9. O

    Common path? Dirty EMG, clean MRI, ALS clinic referral?

    I realize the answer is wait and see the dx, just wondering if I’m on a common path to a diagnosis that others have experienced? I have extreme left arm weakness (can’t lift), and increasing weakness in other limbs + fasciculations + fatigue. EMG by neuro found “active and chronic denervation”...
  10. M

    MND diagnosed in March 2018

    Hi, My father in law Age -73 years diagnosed with Bulbar symptoms in March 2018. He was feeling slight dragging of foot and speech issue for more than a year, but after several doctors visits he was adviced for some voice exercises with reason of 'sound box issue due to age' but after more...
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