mnd

  1. R

    Worsening Symptoms and Second EMG

    Previous thread: Terrified Bulbar or Limb Onset? Varying Symptoms Sorry for posting again, but I've been having daily crying spells. I've tried to stay off the internet researching my symptoms, since the last time I posted my "Central Sleep Apnea" has seem to resolve after a few rounds of...
    • rockyman01
    • Thread
    • atrophy bfs brain bulbar burning calf atrophy canada clinical crying emg fatigue mnd mri muscles onset professor sleep sleeping pills symptoms twitching weakness work
    • Replies: 14
    • Forum: Could this be ALS?
  2. S

    Eighteen, concerned that I may have ALS/MND.

    First, let me start by saying that I am here due to symptoms that have been concerning me for almost month. They are new symptoms that have arisen from other symptoms that have been occurring for over three months now, starting at the end of November. It all started when I had two bowls of...
    • Solipsism12
    • Thread
    • abdomen als back cold concerned constipation dying family hope ice medical mnd money movement muscle night nose symptoms twitch twitching
    • Replies: 8
    • Forum: Could this be ALS?
  3. M

    Is this Bulbar PLS/ALS?

    Hi so to start with I’m male age 26 So a few months ago I got rapid heartbeat tachycardia (I know not often a symptom of MND), They found no cardiac explanation, then started getting muscle twitches which I still get sometimes, again no obvious explanation. I noticed a panting in my throat...
    • Mrman
    • Thread
    • age als als? anxiety bulbar bulbar als choke clinical diagnosed eating emg mnd muscle muscle twitches neurologist pls problem swallow symptom tests tongue twitches twitching umn voice
    • Replies: 9
    • Forum: Could this be ALS?
  4. M

    Young male bulbar symptoms

    I posted two years ago but was unable to post on that thread but it had been closed. During the time between then and now for the most part I was able to move on from my fears of ALS. However that has changed recently as I have developed a mild slur, not noticed by normal folks but was...
    • mddarr
    • Thread
    • als back breathing bulbar bulbar symptoms clean emg clothes diagnosed finger mnd mri muscle neurologist night normal emg scared sleep spasms speech symptom symptoms tongue twitching work young
    • Replies: 2
    • Forum: Could this be ALS?
  5. R

    Worried I may have ALS , scared beyond belief , no one to talk to

    Hello everyone , thank u for taking time to read my post , any and all feed back is greatly appreciated , and for all of u suffering with ALS I pray for u all and am starting a campaign to raise and donate money for ALS ! Ok so here is my story , for the past 2-3 years I have suffered with what...
    • Reneeb
    • Thread
    • als anxiety back bulbar bulbar onset burning emg heart iron medicine mnd money neurologist night onset scared shortness of breath story swallowing symptoms taste test twitching work worried
    • Replies: 0
    • Forum: Could this be ALS?
  6. L

    Question about Bulbar

    I really didn't want to post on here because I know those confirmed with this horrific disease have alot more on their plate. But I also recognize it is a great resource with alot of Knowledgeable people. A little about me, 42/m very active and big into fitness and bodybuilding most my life...
    • leadtheway
    • Thread
    • age anxiety back brain bulbar bulbar onset choke diagnosed emg fasciculations ice life medicine mnd mri muscle onset pain sporadic swallowing symptoms test tongue voice weakness work
    • Replies: 24
    • Forum: Could this be ALS?
  7. R

    Newly diagnosed with MND/probably ALS but have questions

    Hi there – I am a 53 year old female and was recently diagnosed with MND, probably ALS, after two abnormal EMG’s in December. I have had blood work for the usual things (all negative) and MRI’s for the spine and brain (also negative). My only presenting functional issue is weakness in my...
    • RandomMom
    • Thread
    • als back brain diagnosed female finances mistake mnd muscle newly diagnosed questions reading symptoms weakness work
    • Replies: 2
    • Forum: Could this be ALS?
  8. P

    Ear Knocking & Eyes Twitching, PLEASE HELP!

    Greetings, Excuse my English. Does anybody with MND have a Problem with Objective Ear Knocking on both Sides 24/7 and both Eyes Twitching in Same Frequenz? Even my JAW Tremor is same Frequenz. I Really dont know what to do, beacause Nobody Never had Symptoms like this. I Cant sleep beacause i...
    • Paddy1990
    • Thread
    • crying diagnosis eyes help! love mnd please help problem shoulder sleep symptoms tremor twitch twitching
    • Replies: 26
    • Forum: Could this be ALS?
  9. G

    another EMG, concerned

    Hi all you wonderful and supportive people in here! I have posted long time ago and have been in limbo for more than 2,5 years. Its really a hard time and I am progressing slowly and my symptoms and weaknesses are never ever «taking any break». I do have symptoms now in limbs and also bulbar...
  10. B

    My kids will be orphans 😕

    Hi. I’m 46 with a 9yr old daughter and identical twin boys who are 7yrs old. Their father died in 2016 and I’ve been diagnosed with MND (ALS) jan 2018. I’m from Australia and my mum passed away November 2018 from MND. I have the gene. I have 5 siblings. Only one other has had a gene check and...
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