meds

  1. J

    I never imagined it would hurt so bad....

    Hi Everyone, I lost my beautiful little brother on September 12, 2017. He was 47 years old with 2 young children. i knew I would miss his presence but never imagined this much. I knew what the outcome of ALS was yet still feel so unprepared. My mind keeps going back to those last few...
  2. C

    The Importance of Self Care

    When taking care of our PALS we often put ourselves on the back burner. I am horribly guilty of this. I have been running non-stop since February of this year. My dads progression is quick so I am constantly trying to catch up..... This is until this last week. I came down with a major...
  3. G

    So scared and driving myself insane

    First of all I can't believe I'm doing this. I am so sorry if this is disrespectful. I just feel so alone and scared. The past few weeks have been a nightmare. First I felt terrible, I will admit I am under huge amount of stress. But it all cummulatrd one night when I had a extremely painful...
  4. P

    Coping, Just about.

    Hi, I am new to this forum. My Husband Steve has ALS, diagnosed 1/02/2015. Steve had a trach and feeding tube fitted in May. Just about feeling like I am getting my head around it over the last few months. The care involved is incredibly time-consuming and tiring. I feel trapped at times, feel...
  5. tripete

    Rough Clinic

    Today was another clinic visit in Hershey, PA. It was a rough day. My breathing numbers were so far in the tank that they have set up for HOSPICE to visit me Friday. My strength well they recommended that I move to the power wheelchair full time (I did have two falls this month) and that I get a...
  6. T

    New to this forum

    I registered-joined this forum today after researching several other sites because I felt that it was genuine and informative. My 57 year old twin brother was recently diagnosed w/ ALS at Duke University. He was told that the degree of certainty is >90%. He had an appt. in Knoxville w/ a...
  7. T

    drop foot

    My mom whom is 78 is going to be evaluated this month to see if she has ALS. Back in march she started having some numbness in her toes and then a month later she had what we call a drop foot. It's now Sept and she cannot walk without a walker. She has had an upper and lower mri of her back and...
  8. B

    Satchurated Oxygen

    My 02 level has been tanking over the last few months. I thought the reason I was so foggy and lethargic was cuz of my meds. About two weeks ago I had a light go of in my head and decided to break out the oximeter. Much to my chagrin it displayed 80, I almost sh!t my nickers. I had been...
  9. Kristina1

    feeding tube

    I have an upcoming consult with the GI people for a feeding tube. What kinds of questions should I ask them at my appointment? I was told it would be a short (20 min) procedure, and then an overnight at hospital for observation. My breathing numbers are good but the pulmonologist at clinic...
  10. M

    Concerned- have read stickies

    Thank y'all for your time, I do appreciate any responses. Approaching 50 and concerned about ALS. Two main symptoms- 2 months so far of unrelenting twitching, no meds, don't drink caffeine, only stressed about this, all minerals/electorlytes checked 1-2 months of cramping Both symptoms are...
Back
Top