meds

  1. BlsdMama

    ALS/FTD and fungal skin rashes

    Is there a connection? My grandma had FTD. I remember before things started getting bad how it started and then began to spread and get really bad. The itching was intense. I've had a rash for about two weeks and was putting an anti-fungal on it. Went to Urgent Care yesterday and she said...
  2. Bestfriends14

    Pimozide

    Happy Friday everyone (and Saturday to some). My PALS started on the phase 2 clinical trial of Pimozide on December 20th. The first week he had no side effects, but the last several days have been brutal. Excessive drooling, slurred speech and a shuffling walk. He sleeps constantly, too, and...
  3. V

    Any advice would be appreciated

    I am a 41 year old mom of two. I was diagnosed at age 27 with chronic myeloid leukemia and put on oral chemo which I continue to this day, everyday. I was in pretty good health until an episode of shingles three years ago. Afterwards it felt like I couldn’t deep breathe and had chest pain...
  4. A

    Back after over a year

    Hello all, My name is Ashley I'm a 27 y/o nurse. I posted my concerns in 10/2016. I had had a normal emg as per my neuro with some polyphasic potentials on my right side. I had a new emg done in 7/2017 which my neuro stated was still normal and those same polyphasic potentials on my right side...
  5. Erika

    rough day today

    It's been 7 weeks since my mom passed away . My parents apartment has been emptied and keys have been returned. People and agencies have been notified, and death certificates picked up. Time slowly starts to go back to the pre symptom, pre Dr visits, pre ALS days. And I miss her. I know she's...
  6. chally

    Icu

    well apperantly 6 mons of alka seltzer torn my stomach up was bleeding pretty good out thebutt and I landed in ICU @ VA. Hosp. It worked for me on nasal drip but I never saw it coming t hat it was doing damage . So I guess all meds have side effects traditional or non. So if your using alka...
  7. M

    Anyone else with B.A.D. diagnosis?

    new to the forum so please forgive messy typing, etc. I began having fasciculations in left arm in Jan 2016. father had Parkinsons and I've had restless leg syndrome for 20 years and been on parkinsons meds so I assumed that was cause. Pk was ruled out but had emg ncv in july 2016 and neuro...
  8. N

    23 year old worried about ALS

    HI everyone, I did read the sticky posts before starting this post, but I'm just a nervous wreck and I was wondering if someone could enlighten me regarding my symptoms. About a week ago My right index finger and thumb started twitching. It won't stop. Its like once every minute or so every...
  9. Firefighter58

    Neurologist check up

    Hello folks, on Friday had my 6 month checkup with my neurologist, no progression that is two checkup in a row now, a year now with no progression. Made me and the neurologist happy. Discussed removing the Peg but because I take my terrible tasting meds and vitamins with it I decided to keep...
  10. B

    Drinking too much water?

    My wife is in a fairly late stage of ALS; no limb movement, speech very hard to understand entered home hospice care, vial capcity now in 20s-30s (I have a blog entry explaining more). She drinks water constantly, day and night, and for this reason spends most of her time soaked. Despite a towel...
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