Everyone, thanks for the continued sage advice on all topics. Hubby dx in 2013; now wheelchair/recliner bound, trilogy non-stop. Having some what I have deemed to be panic attacks. Comes on if he thinks he's not getting enough air or he gets upset about something. Neuro has prescribed Xanax...
I just wanted to post what we went through yesterday in case anyone has this issue so you know what we did and hope that it might help someone else.
This is not something I ever thought would be a problem with ALS.
Last night my sister was in distress and we couldn't figure out was wrong, now...
So my sister has not slept since Wednesday. I am concerned cause everything that we have tried is not working. With all her meds she takes every day and she gets Benadryl, morphine, melatonin, on and on - Xanax! She used to sleep like 20 hours a day and now she is not sleeping at all. Has anyone...
Hey peeps, I need your collective wisdom.
We are in the hospital, day 9 post trach/vent. They have had him on a constant trickle feed with the same formula he was tolerating at home (2 cal) , and his stomach and colon are filling with gas that won't move. His stomach gets so distended that he...
In another thread I explained that I didn’t think I’d be able to be enough support for my boyfriend who lives with his mom and sister.
He and I have been together for 5 years but have been becoming a bit distant since my daughter died 7 months ago. I’ve been needing time to myself . But then...
I have a feeding tube that I currently use for my meds. I see the day approaching where I will need to start using it for nutrition. What are the side effects? Will it be diarrhea after every feed? What formulas are best to reduce diarrhea? Ive heard of gravity feeding and a pump....HELP...
I am new to this forum. My husband was diagnosed several years ago, although looking back, I see the changes in his personality well before his diagnosis, but didn't know what it was at the time.
I try to take things one day at a time, but finding myself increasingly drained of energy. There...
My honey decided it was time to go on hospice care last week, All was going well, a few new meds to help with the respiratory distress and a nurse a phone call away! Very nice until Sunday morning, I realized his lips had swollen over night till they looked like Mik Jaggars' lips, One of his...
Hello
just got my third EMG done and it showed some new problems that have never been there before. Unfortunately I dont understand those expressions in my medical report and since English is not my mother language it is hard to find and translate it, anyway I hope that someone in here can help...
als
back
bfs
diagnosis
emg
fatigue
go away
hope
life
medical
meds
muscle
muscle weakness
pain
problems
progression
running
symptoms
twitching
weakness
work
worry
wrong
both the Atlanta va pharmacy and express scripts(Tricare program) have rilutek/riluzole on backorder. anyone else having the problem ? ? appears strange that both pharmacies would have the meds on backorder.