hello all,
i have limb onset that has now progressed to where even a little walking is very tough. my voice is weakening and i am laughing and crying too much. i take herbal medicine for the crying. i also see a therapist once a week and am making a great effort at self-caring and fun projects...
Has anyone tried the holistic approach ? Further testing for Lyme disease, heavy metal testing ect? My husband was recently dx with ALS and from doing some research it seems like his symptoms are different. He seems to have more generalized weakness that didn't particularly start in any limbs...
Hello all, my brother was diagnosed 2 weeks ago with ALS. He's 40 with a pregnant wife and a toddler.
His diagnosis took about 15 months from first symptom - a fall.
He now has a finger that doesn't work, an arm muscle that doesn't work, some weakness, twitches, and some spasticity. He also has...
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Hi,
I am from India, and writing this to explain my Father's(51 year Old) symptoms. He started having some problems in his right leg 4 years ago which slowly worsened and finally 3 years ago extensive tests including MRI's, Auto Immune, Blood reports, EMG's and NCG. Everything came out normal...
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Hi all: I'm sorry to post but really hoping for input. A few week who's, I started having blurry vision and headaches. I eventually went for a brain Mri which came back clear. I was then out on medicine for anxiety. A few days after I started the medicine, I began experiencing major cramps...
A few weeks ago, my husband started feeling really weary and tired most of the time.
Let me backtrack. He is taking medication for high blood pressure, diabetes, anti inflamitories, lasix for leg swelling, riloteck, got a steroid shot in his right knee, and is also taking some herbal medicine...
Hi everyone. I wanted to introduce myself to the forum.. My name is Melissa. I posted a couple months back, or so, in a different section asking "Is This ALS?". Unfortunately for me, my symptoms are progressing in my right limb, and now have noticeable fatigue in my neck and upper back. Typing...
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Hi, my name is Miguel, Im from mexico, my father was recently diagnosed with als in march of this year... Me and my family are very desperate because the disease has progressed very fast... he can almost walk and speak, he cant move his hands... and he is very depressed, just as we are..
He is...
Today we saw my boyfreinds doctor and he mentioned masitinib.
From what i have seen on it it seems like it is another medicine like riluzole.
My question is what is the difference?
And just curious of any opinions on it rather its something he should try or not.
He was diagnosed in April...
Some of you may know about ALS TDI's Precision medicine program. The first phase required a trip to Massachusetts and involved blood tests and a skin biopsy as well as ongoing monthly activities that you do at home. Several of us participate in that but others were not able to
Phase 2 is...