medicine

  1. Tedstehr

    FTD and ALS

    My father-in-law died of FTD/ALS shortly after my diagnosis of ALS. We knew he had FTD, but had no idea about the ALS until I started researching the disease. When I found this sub forum, I strongly suspected what had happened. My father-in-law, Yan, was an incredible man. He was a GP and...
  2. L

    Bulbar ALS?

    Hi I am a 28 year old RN in Las Vegas. Unfortunately medicine here is not very advanced and we do not have very many specialist. I have been seeing a neurologist for over a month for only 3 blood test for myasthenia gravis and an RNS to be done. My symptoms are seeming to worsen. I’m guessing...
  3. F

    Not Holiday, But Stll OK

    * I don’t understand why prescription medicine is allowed to be advertised on TV or why anyone would think of trying one of the medicines after listening to the laundry list of warnings of possible side effects. But this is definitely an exception! Do you have feelings of inadequacy? Do you...
  4. K

    Edaravone (Radicava)

    Hi There, my dad was recently diagnosed with ALS. We live in Toronto, Canada. Canada has yet to approve the drug, however I heard that someone from Canada travelled to Japan to buy the medicine. Anyone have any information on how we could go about getting the drug?
  5. K

    Claiming to be short of breath while on trach and vent

    Hi guys, My dad got his tracheotomy and ventilator a little over 2 weeks ago. When we were at the hospital, he was doing fine adapting to it. His heart rate was around 70-90. However, we just moved to a nursing facility that has a subacute section and the first week, he was doing fine. But in...
  6. S

    Is it ALS?

    Okay so I would like to start by stating that I am asking this for my mother who is 48 years old. Please excuse my grammatical errors as english is not my first language. It all started with TIA like symptoms. One day..out of nowhere my mother suddenly felt her left hand go numb...
  7. A

    Nsw/au cals

    Hi, I was listening to a totally unrelated podcast yesterday which got me empowered to want to raise awareness in AU/NSW for MND. This morning the NSW govt. gave $2 mil (or more) to cancer research and 2 other diseases as well. My husband made a comment saying "thanks for leaving us out!"...
  8. D

    36 and diagnosed with mnd

    Hello, my name is Nathan. I am 36 yrs old with a beautiful wife and 3 wonderful children. From all the research I have done my case seems to really be off the " norm". About 7 yrs ago I noticed that both of my calf muscles were twitching ( now calling them by there real fancy name...
  9. M

    ALS Symptoms. Why you (MOST LIKELY) don't have ALS.

    Introduction Like you, I was in this forum worried sick I had ALS, Heck! Not only that! I was 1000% certain I had ALS, there was not a doubt in my mind my days were numbered. I had stopped any plans whatsoever for the future because I was certain I would be on a wheelchair watching my days go...
  10. A

    Upset Rant

    Hi All, I'm having a really down day and need some help... and probably hugs.. i don't know. Here's a bit about us: My husband had his first symptoms 5 years ago in his calf muscles. Since then it pretty much stayed where it started, calf muscles. His toes are slightly affected, his knees a...
Back
Top