My father-in-law died of FTD/ALS shortly after my diagnosis of ALS. We knew he had FTD, but had no idea about the ALS until I started researching the disease. When I found this sub forum, I strongly suspected what had happened.
My father-in-law, Yan, was an incredible man. He was a GP and...
Hi I am a 28 year old RN in Las Vegas. Unfortunately medicine here is not very advanced and we do not have very many specialist. I have been seeing a neurologist for over a month for only 3 blood test for myasthenia gravis and an RNS to be done. My symptoms are seeming to worsen.
I’m guessing...
advice
als
als?
arm
arm weakness
back
bulbar
emg
immediately
insurance
medicine
mestinon
muscle
neurologist
night
pulmonary function test
scared
stroke
stupid
swallowing
symptoms
test
tests
twitches
weakness
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I don’t understand why prescription medicine is allowed to be advertised on TV or why anyone would think of trying one of the medicines after listening to the laundry list of warnings of possible side effects. But this is definitely an exception!
Do you have feelings of inadequacy?
Do you...
Hi There,
my dad was recently diagnosed with ALS. We live in Toronto, Canada. Canada has yet to approve the drug, however I heard that someone from Canada travelled to Japan to buy the medicine. Anyone have any information on how we could go about getting the drug?
Hi guys,
My dad got his tracheotomy and ventilator a little over 2 weeks ago. When we were at the hospital, he was doing fine adapting to it. His heart rate was around 70-90.
However, we just moved to a nursing facility that has a subacute section and the first week, he was doing fine. But in...
Okay so I would like to start by stating that I am asking this for my mother who is 48 years old.
Please excuse my grammatical errors as english is not my first language.
It all started with TIA like symptoms. One day..out of nowhere my mother suddenly felt her left hand go numb...
Hi,
I was listening to a totally unrelated podcast yesterday which got me empowered to want to raise awareness in AU/NSW for MND.
This morning the NSW govt. gave $2 mil (or more) to cancer research and 2 other diseases as well. My husband made a comment saying "thanks for leaving us out!"...
Hello, my name is Nathan. I am 36 yrs old with a beautiful wife and 3 wonderful children. From all the research I have done my case seems to really be off the " norm".
About 7 yrs ago I noticed that both of my calf muscles were twitching ( now calling them by there real fancy name...
arm
atrophy
back
bfs
brain
children
diagnosed
emg
family
fasciculations
gabapentin
medicine
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neurologist
ohio
research
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work
worried
Introduction
Like you, I was in this forum worried sick I had ALS, Heck! Not only that! I was 1000% certain I had ALS, there was not a doubt in my mind my days were numbered. I had stopped any plans whatsoever for the future because I was certain I would be on a wheelchair watching my days go...
Hi All,
I'm having a really down day and need some help... and probably hugs.. i don't know.
Here's a bit about us: My husband had his first symptoms 5 years ago in his calf muscles. Since then it pretty much stayed where it started, calf muscles. His toes are slightly affected, his knees a...