Sorry, I don't quite understand how to find an existing thread, so if there already is information existing in the forum, please let me know how to access it and I'll start there.
My partner is trying to get a BIPAP. Everything I've read and researched says starting this therapy earlier rather...
Ironically, the VA delivered the power chair and the assisted speech device from TalkToMe Techologies yesterday and Tom passed away yesterday evening. So...I have a Permobil M300 Power Chair and an assisted speech device that have never been used. The assisted speech device can be used with your...
Hi fellow CALS,
My name is Ariel. It's been many years since I've posted on this forum but our family has determined we need some help form those that might have more experience than us.
My mother has had ALS for 10 years now. She's completely paralyzed except for eyes and mouth (which have...
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Hello,
I have 2 Prafos that were used briefly by my mother. We were never able to get Medicare to pay for them, even when there was a need. I was thinking someone else might need them, and not be able to get insurance to pay for them. Just pay shipping.
Thanks.
After a horrendously unsuccessful attempt with a company that has only one RT, I returned my BiPAP (medicare didn't even approve it because of a mix up with the RT's company), I have a Trilogy and Cough Assist coming on Tuesday.
This is from a new company. I'm still not optimistic but the...
we are behind in getting equipment for als / paralysis.
i spent the first two years of this, researching and trying experimental treatments. my wife and i went to Thailand for 7 weeks chasing stuff. drove out to Colorado, spent 7 weeks there, chasing stem cell.
my body continued losing...
My husband has started using BiPAP during the day. His full-face mask works well at night but we want a smaller mask to use when he's awake. A rep at the company that supplies his BiPAP equipment claims that Medicare will only cover one type of mask, and that their system will only handle one...
My PALS uses a Trilogy via mask. It is rented through Medicare. The Hospice intake nurse stated that he could not be accepted because Hospice woukd not pay for the Trilogy. Has this happened to anyone else?
After a lengthy trial with the first medical supply company for my BiPAP, I ended up sending it back. The RT was so annoyed at the "machine" and "ALS" that she just couldn't work with me. Laurie ended up helping me with the proper settings but either my doctor or the medical company didn't...
This past week I had another clinic visit. One of the the things that has struck me as I have been thinking about what was said to me was how many times the phrase "Quality Of Life" was brought up.
I refuse to take medicine for the pain and cramps as I do not react well and they make me foggy...
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