medical

  1. G

    Trust your neuro (and the stickies)

    Dear all I also have gone through the hell of fearing having als. After my father was diagnosed and during his battle with the illness ,i was there and doing the best to support him. After he was gone i began to examine every twitch that lasted more than a few days and even did two emg's...
  2. KarenNWendyn

    Shingles

    A fellow walked into a doctor's office and the receptionist asked him what he had. He said, "Shingles." So she took down his name, address, medical insurance number and told him to have a seat. A few minutes later a nurse's aid came out and asked him what he had. He said, "Shingles." So she...
  3. jethro

    Can not say to dr. when my ALS started, so he cant say if i'm slow/fast progressive

    can not say when my als started. i had dizzines and stil have it and that's why i visited neurologist. i felt something is wrong in spring 2015., something with balance. tripping, falling etc. did all tests by 06 /2016 and there were no signs at all. emng ok, all als tests ok, even i felt bad...
  4. L

    Equipment rental in Orlando

    Has anyone used Orlando Medical Rentals ? Needing to rent a lift and rolling shower chair for vacation . Any help gratefully received .
  5. Kristina1

    medical marijuana and traveling

    So I got on the mmj bandwagon. It's definitely helping me. But I am traveling across state lines several times over the summer and was wondering what others do in this situation. I was told when I got the license for it that it is illegal to bring across state lines with me.
  6. jethro

    Globus vs TENS

    when i found out that i have als, i searched days and days through medical libraries, devices which "help" to improve, studies, youtube and first what was on my mind to buy immediatelly TENS. i asked physiotherapists will it help, they said no. so i quit with idea. right now, doctor sent me to...
  7. K

    FIG4/ALS11 mutation

    I'm going to try to keep this short and start by saying I'm actively trying to get into a neuro at the local hospital that deals with neurodegenerative diseases. Through genetic testing (legit, medical testing done by a Dr.) I was found to have a mutation of the FIG4/ALS11/Sac3 gene. It's...
  8. B

    If not ALS, then What?

    I have been restraining myself from posting on an internet forum until i had all the medical info i needed help to moving foward with a diagnosis. i dont want to waste anyones time because i know a lot of people from this fórum are dealing with this horrible disease. Im here on behalf of my...
  9. M

    Lung Function Question

    My husband was diagnosed in May 2017, but we can look back and see symptoms that we didn't recognize in August 2016. He had his first ALS Clinic visit in June 2017. At that time his Forced Vital Capacity (FVC) was 3.9 and they said his lungs were great. It dropped to 3.6 in October and 3.3 in...
  10. R

    NP001 Neuraltus

    https://journals.lww.com/neurotodayonline/blog/NeurologyTodayConferenceReportersAANAnnualMeeting/Pages/post.aspx?PostID=65 LOS ANGELES–An experimental drug that regulates inflammation and showed a strong signal in a pilot study in patients with amyotrophic lateral sclerosis (ALS) failed to...
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