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  1. G

    Six Months - Many Symptoms - No Answers

    Hello, Like many others I have been visiting this message board after experiencing symptoms that led me to the internet - that led me here. I have read many posts and many stories on this site and have much respect for this wonderful forum. I will try not to make this a long and hard to read...
  2. B

    Concerned!!!

    Good Morning Prayers and blessings to everyone affiliated with the website and forum and their families. I am a 47 year male that was in great shape. I am 6ft 2in with weight fluctuated between 198 to 200 lbs. I worked out in some capacity everyday. My only previous health issues were acid...
  3. T

    tricks against fears and anxiety

    Dear all. I've been caught into a depression spiral lately. I'm quite stable symptomwise as for now but I'm taking a heavy beating mentally. The most challenging moments are dusk and mornings just after waking up. There creep the worst thoughts of any day: anger, 'why me', mediations about my...
  4. Bestfriends14

    LizF

    LizF, living in Victoria B.C. chose to leave this world on her own terms, late last year. I'm not sure if this has been posted already and if it has, my apologies. Here's a nice write up a friend did for her. I had written to her shortly before she passed, not knowing anything of her plans...
  5. N

    Haven't been here since 2011 and now I am scared. Triggered again.

    So I am back after a brief hospital stay which caused whatever I have to flair up again. It all began in 2011 *******-------Feb 4-5th 2019-----------********* So went back to same neuro with exasperated symptoms after a brief stay in the hospital for severe constipation. After the hospital...
  6. H

    ALS fear with thenar atrophy, twitching, cramp tendency

    Hi there Great respect to your forum and the great people that are fighting the disease, friends and care givers! ALS is a shocking tragedy for humanity in 2019, 150 years after its discovery still no cure. About myself I'm Asian, live in Calgary, Canada. I'm 33, a father of 2 lovely kids at...
  7. B

    2 emg's, still not convinced

    Keeping it short, I have three questions. 1. I’ve had two emg’s done by two different neurologists. I didn’t think the first one was done correctly and I’m worried the second one wasn’t either. The second neurologist did the emg at my request because of my ALS worries and also to test the...
  8. Kristina1

    update on me

    I haven't posted in a while so I wanted to update. One of the main reasons I haven't been on here is... I'm writing a book! Or trying to. It has nothing to do with ALS or anything autobiographical. It's a scifi/fantasy romance. I've long been an avid fantasy reader, and always had stories of...
  9. C

    Help interpreting EMG

    EMG results Hello: I went to my neurologist with the following symptoms: progressive spasticity, extending from left hand to left foot over the course of a year and a half. Lack of balance and clumsiness. No fasciculations or atrophy. My EMG results arrived today. I will be translating to...
  10. C

    Levosimendan

    The clinic called and asked me if would be willing to take part in the Orion (levosimendan) phase III trial. Just wondering if anyone here had any experience with it...
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