mad

As some of you might know I'very had a tough time for a little while now. Last March I woke up one day & well who would have thought getting into bed the previous night would have been my last steps. I could still stand & pivot but then was having some trouble with that sometimes and in June...

As I am new on here and just posted that we found out my mother has ALS (fairly advanced - no longer talking and barely moving) it has certainly changed a lot for me. I have already canceled a business trip this week and cleared my calendar to be with her as we go through this. However - I have...

I think it is time we start a new pity party going! I am having one today! LOL. Super duper extremely pissed at my darling husband and all I can think about right now is walking out that door. Today my husband fired my only office assistant. I run our business, and only had one person in...

Diary of a Mad Snow Shoveler December 8: 6:00 PM. It started to snow. The first snow of the season and the wife and I took our cocktails and sat for hours by the window watching the huge soft flakes drift down from heaven. It looked like a Grandma Moses Print. So romantic we felt like newlyweds...

Says I would be a danger to myself and others. I dont feel Im quite there yet but she gets really mad when I bring it up. Says Im not letting her take care of me. I dont want to be treated as a cripple before my time.

Hello, my friends. I would love insight, opinions and suggestions. Last June, before my husband was diagnosed with ALS, my parents decided they wanted to take the the whole family on a cruise. 22 people in all, kids, grandkids and all. My husband was not planning on going with us as he didn't...

Hi everyone, Not sure where to start but I wish I can find some kind of help... Mom was diagnosed a bit more than 2 y ago with bulbar onset. It has progressed enormously in the past months to the point where she does not talk, eat and move anymore; just slightly her head and one of her hands...

A story to tell. We all have our own stories to tell. They can be told with gloom and sadness. Or they can be told with hope and faith. Sometimes the story is within yourself. And you find yourself unwilling to share it. We all erect beariers to protect ourselves. We lash out to the ones we...

Well, we are day 5 into our first hospice/ hospital facility stay. Things aren't looking too good, no since in getting into all the detailed Dr. Talk....... I guess we all know what the end looks like. I've just been so upset for one; well the obvious and two the forum would not allow me to log...

hope no one minds me asking but before you were unable to support yourselves on your legs what did it feel like. I am still working as my job is 'desk bound' but more and more when I go to stand my thighs feel like they cannot support me, I feel like jelly and just want to flop and not try...