mad

I just need to rant here tonight because it has been a crazy tough week at our house. Along with physical changes my mom's personality seems to have taken a drastic change. I know anger is a part of dealing with this disease and potential FTD. She seems unrecognizable to us now and has been...

I feel horrible for posting here and I hope to god I don't belong here, but I've been dealing with some troubling symptoms that I found out could possibly be als. Before I get further in I have been evaluated by a neuromuscular specialist for my symptoms which are shortness of breath climbing...

Hi everyone I come back on the DIHALS because my symptoms are becoming worse day after day. I had to tell you about my TST, (very painful test by the way), which came back normal. Since 1 month now, I am suffering from constant twitchings (plus bodywide twitchings since 8 months) in boths...

Hi Everyone, I've been working like mad, trying to get more content into the clothing alterations section of my blog. The latest addition is a long black turtleneck sweater. Altered long black turtleneck | Tube Chic

I'm finally able to log on again. Was having trouble but now I can. Anyway my hubby has to use the bedpan now to. He gets mad, but I cannot physically lift him anymore. He is too week. Legs collapse and I have been injured myself yesterday trying to lift him. I said no more, for safety he needs...

Hello everyone, I too have read the stickies and have a question about my symptoms. I must say that muscular dystrophy runs strongly in my family and that while I, at 33, am still fairly young to have onset symptoms, obviously we are not ruling this out. I am awaiting gene testing for this...

WOW! Don't know how many times I said that but it sure was a lot! This area of the US is spectacular! My brother one year older was my cals for the trip and with OJT he performed fantastic. Our host and general manager of Jackson Lodge was Alex Klien And his associates , they did a fantastic...

We went to clinic today and heard positive things. Doctor said Brian will walk for a long time. A long time in ALS terms no doubt but still good news. Progression almost non existent from last time. Progression overall slow average and not likely to get fast. Good and more good. We got hooked...

Hello, I've been following this forum for quite some time but have never had the time to share. my husband was diagnosed with ftd 2014 ALS june 2015. As of this morning he refuses any help with breathing issues..no oxygen no BiPAP no doctor visits no showering it's been almost 5 days again...

Good morning everyone, I had to cancel my trip up North because I decided to try the lunasin protocol and just got overwhelmed with all that I'm trying to do. I'm worn out to the point that I just don't know where to place my energy and priorities. I'm at a point where I don't know where...