love

After reading a few threads about the Vancouver ALS Clinic I spoke to the main contact there about "Giving Hope without False Hope." I sent a follow up email listing some things like the supplement list Sunnybrook gives out (thank you Al!) so people can feel they are doing something. I am...

I am in need of honest opinions-and maybe a little tough love. First: I have so much respect for the folks battling this disease while also being willing to support and advise others. My gratitude goes out to you. Second: I read the sticky, and I realize I likely don't belong on this forum...

My husband, the love of my life was diagnosed with the slow moving ALS 2 months ago. I have been freaking out and crying and a complete mess. I think I am sort of in control now. He has remained in control the whole time and says that he can’t afford to break down since he does not know how...

In February I noticed my right knee started to hurt after exercising in pool. Just sitting on a noodle and peddling it like a bicycle (same as I had been doing for last year). I also continued walking on a treadmill for 10 minutes (1/2 mile) each morning, sometimes on a slight incline to get...

My name is Bella. I am 23 years old I am married to a wonderful man. My husband is a 35 year old male and he has been sick for about 3 months with terrible symptoms. He did get some MRI's done and it did show that he has bulging disc in his neck and lower back. Also known as herniated disc in...

now that the end approaches thought I'd share a few things,. This group has provided the best support. My five years have been filled with joy I never thought possible. I give credit to my attitude of not letting this beast get hold of my heart and soul. Also for my determination to follow...

My one year anniversary was last month. I actually decided to take that week off from work and spend it alone in Cape Cod, which was always a special place for us. I went to the beach at sunset on the very last day of this year of grief and sorrow. As I rode my bike taking in all the...

*Ephesians 6:18 And pray in the Spirit on all occasions with all kinds of prayers and requests. With this in mind, be alert and always keep on praying for all the LORD's people. *Psalm 55:17 ESV Evening and morning and at noon I utter my complaint and moan, and he hears my voice. *2 Timothy...

Salutations of the Day:-) *Having ALS seems unreal. I wake each morning reminding myself I have it. Checking to see what I can still do. Yesterday, my knees buckled and I collapsed. Luckily, I could hold myself off the floor until my family dragged me up into bed. Leg strength to raise...

Hi everybody! Hope you all had a great weekend. What do you PALS do for signing documents? My buddy has almost lost all ability to sign, but still has full cognitive ability to do so. I realize that eventually we will use POA, but is there something we can do in the interim? I've looked...