kids

Hi my name is Rob. i'm a 34 year old that was diagnosed with ALS or MND as it is called here in Australia in May. i have had balance and drop foot issues for the past 12-18 months i also have issues with my left side, including wasting in my left arm and fingers that i can't straighten in...

Sometimes I even hate to do a rant like this because I feel like I'm whining. It's taken me 24 hours to get up the courage to put pen to paper, as it were. Yes, I'm struggling. The why has multiple reasons. These are on no particular order. 1) sleep. Hasn't been going well. Mostly due to the...

I have had als for 6 years and vented for almost 3 years. I made this for several reasons : physically (i a basically paralyzed from head to toe), quality of life, financial, insufficient nursing, burden on my family, ready to meet my maker and make me whole again. I am at peace with the...

Howdy. So the neurologist said. After muscle twitching for months I was referred to an EMG specialist. After he performed his thing on me the resulting diagnosis was, as in the title "probable mnd, probable als". I'm a 43 yo male, with two little kids (2 daughters), and I have to say this is...

I have recently been getting more tired, taking naps and when walkingtbe dogs around the block a couple of times I suddenly had to sit down in the road It is hard to explain the exhausted feeling that hits me. I think it is my stomachs muscles. I feel like my husband and kids (18, 19) don't...

Hi Everyone, It's been 13 month's since my husband's diagnosis. It's been a really long time since I've posted on here. I just wanted to update everyone on how everything is going, but first I would like to THANK ALL OF YOU :) You were my support system with your encouraging words of wisdom...

With the 1 year anniversary past without to much sadness and My Son getting called back to his job and My Daughter getting into every college she applied to with many scholarship offers I feel like I was in a decent place. My new G/F is wonderful understanding and loving to the 3 of us.. My...

Checking in, if anyone remembers me. My progression has been fast. Dx Jan 16, now no walking, almost unintelligible talking, typing with one finger. Feels like if I lose my typing I might lose myself completely. I tried eyegaze but it couldn't track my eyes through my glasses. My breathing and...

So I sold my house where my kids grew up(lots of angry tears there, thank you) and moved to a RANCH. Spending ALL my money renovating this ranch for my family. Putting in a basement apartment for my kids/mom and at some later point a home health care aid if a live-in is necessary. My question...

Hello, I wanted to know about the value of getting genetic testing for my mother, who is 79 and in the final stages of ALS, and for me, a 40 year old father of 2. My maternal grandmother was diagnosed with Parkinson's in Asia at the age of 58. This was in the 1970's. she developed dementia...