My husband gets seen by the VA but they sent us to UT Southwestern to the pulmonologist to get a sleep study and orders for a cough assist and Trilogy. They are also the ones who are going to do the PEG tube. We had our first appointment there a couple of days ago.
Towards the end of our...
hi
i have als, limb onset age at start of symptoms 47. when i was diagnosed there was no hint of any family history. Not good but at least i wasn't worried about my kids.
today i have had the devastating news that my mum has been diagnosed with bulbar onset at age 75. the doctor has...
Hi Everyone,
This is my very first forum I have ever done. I’ve debated for quite some time now about posting so here goes nothing.
I’m a 33year old female. I have 3 small children. I know something is going on with my system but I don’t know what. Last spring I got massive head fog and body...
Hey Everyone,
I have been going some issues lately that I would like to get some experienced opinions on. I am a 34 yr old male with two little kids and I have been terrified that something is happening.
2 months ago it started with what I perceived was numbness, but after two months have...
Hi all,
I just gave birth to my son two and a half months ago, and i have been told i have post partum depression, and i have been a little overly worried about dying lately. However, I feel that i have developed symptoms that point towards ALS and i am very scared.
Here are my symptoms...
Hello All,
I apologize up front for having to start a new thread as my previous one got locked due to inactivity. For those who followed my initial thread, I've been dealing with a variety of symptoms since at least late March 2017. I am a 41 year old male.
As a patient who uses the VA...
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I am still upright and survived six weeks of travel with family, and three weeks to get the kids back at school and the check ups at the ALS Clinic. My end of the VitalityALS double blind trial thread was closed, so this will be a new update thread.
The last posts were to follow up on the Trial...
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arm
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progression
ramp
travel
trial
trip
update
walker
wheelchair
whenever I feel sad, I come here to this place with all of you. it is like my safe spot--I know how all of you feel and you know how I feel...some of you know me, and so many new people here have no idea who I am. but I know you love me and understand me just coz...
This is my sad month...I...
That is what this forum is to me. I am happy for any constructive, supportive things I can do for others but I honestly just love how I can say what I mean here about my own life.
People ask me how Brian is, bless their hearts. I appreciate it, and I say he is okay/stable. I may change that to...
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young
I have been trying to figure out what has been going on with me for 3 months. Today while eating a Big Mac I noticed that my food was going down the right side of my throat more so than the left.... When I got home I looked in the mirror and it is obvious that my tounge is lazy to the left and...
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