kids

Did anyone acquire a wheelchair early to use for outings that would be difficult/impossible due to distance walking and fatigue? I have a weird gait (spasticity) but I still walk pretty well. But I can't do much in terms of distance. We are thinking about using a wheelchair for family outings...

Hi. I'm new to this forum. My husband was diagnosed with ALS in Nov. And I have watched him become almost mean complaining about the smallest things and just impatient with me. I come back at him and becoming so angry. He is in a scooter and starting to become weaker in hands and arms. He use to...

Hello, I am a 44 yo male. I started to notice slurred speech in September of 2017. Shortly after, I was having difficulty opening water bottles and packages with my left hand. In November my fasiculations became constant in my left arm. My slurred speech became more prominent. In December...

sorry guys , have been having unsolved neuro issue for 10 months, now getting sent to mayo clinic in rochester in 2 weeks. So i have had musular twiching in toes (really arch of left foot) that causes my toes to move, then it moved to my left leg, then moved to left eye, mostly over last 8...

Hi, I was adopted when I was young and did not know my full medical history. I just discovered that the C9 mutation runs in my family. Over the last 4 years, 3 people have died from this - my uncle and aunt from ALS and my mom from FTD. I am unsure if anyone else is currently affected in my very...

Hello everyone. I apologize for posting a new thread, by my previous one titled "Strange Symptoms" has closed. To summarize the last thread, I had asked whether anyone had ever heard of ALS presenting with fibrillations on the face, and bilateral, transient weakness throughout the body. You...

Hi all, Thank you so much for taking time to read and respond. I️ really appreciate it and all this forum does. I have a question about familial als. My mother in law passed away from als at 57 after a 6 year battle with bulbar als. At the time it was determined that hers was sporadic. For...

We are looking for an accessible van. What specific features in a van should we be looking for to make things easier, or what have you found helpful? Passenger seat that we can transfer into? Manual or power ramps? Is side or rear entry better? We also need to have a row of seats for our kids.

Hi all, my name is Mari and I'm Finnish. I lost my mom to ALS on Nov 17th. She had an Alzheimers diagnosis on July 2017 as we took her to memory tests as she didnt seem to remember everything as normal and did not cook or do gardening anymore nor cleaned the house as usual. She was diagnosed...

It's been 7 weeks since my mom passed away . My parents apartment has been emptied and keys have been returned. People and agencies have been notified, and death certificates picked up. Time slowly starts to go back to the pre symptom, pre Dr visits, pre ALS days. And I miss her. I know she's...