insurance

  1. R

    Worried that I might have ALS.

    Hello, My name is Lauren and I'm 24 years old. First of all, my heart goes out to anyone suffering from ALS, and any family members as well. I admire how truly brave all of you are. The reason I'm posting is that I have been noticing some strange symptoms over the last couple months, and I...
  2. L

    Bulbar ALS?

    Hi I am a 28 year old RN in Las Vegas. Unfortunately medicine here is not very advanced and we do not have very many specialist. I have been seeing a neurologist for over a month for only 3 blood test for myasthenia gravis and an RNS to be done. My symptoms are seeming to worsen. I’m guessing...
  3. N

    Insurance for Spouse

    Good Morning, Giving this a try. A little background for my dad: He was diagnosed early months of 2017, receives Social Security Disability. Medicare A and B, recently enrolled into Supplemental Insurance as well. My mother depended completely on his income when he did work. My dad can no...
  4. worrieddaughter77

    The cost of ALS in the long term

    Hello, I would like to figure out what is going to be the financial side of my dad's illness. My dad has a very good PPO insurance in Illinois, and so far all of his treatments were covered ( when they were approved by insurance. The insurance has only rejected his spine MRI once). What should...
  5. swalker

    Update on Wheelchairs

    It has been awhile since I last posted about my wheelchairs. The threads where I posted are closed, so I am starting this one to share my experiences so far. My primary wheelchair, the Permobil C500s VS, is still in the shop. NuMotion has confirmed it needs new motor, gearbox, brakes, and...
  6. worrieddaughter77

    How to pick cough assist or suction devices?

    Can you please recommend what brand of cough assist or suction machine to buy for my dad. He complains that his saliva is too thick now, and i don't know where to start. Should we tell this to our dr so that he prescribes one, or is this something that is normally not covered by insurance...
  7. C

    Foot plates on PWC

    I would like to know if you use a PWC if you have power foot plates? My PWC has manual foot plates which require me to lean over and manually fold them so I can transfer from the PWC to bed, toilet etc. Its becoming more difficult for me and I'm afraid I could roll out of chair and the...
  8. P

    Coping, Just about.

    Hi, I am new to this forum. My Husband Steve has ALS, diagnosed 1/02/2015. Steve had a trach and feeding tube fitted in May. Just about feeling like I am getting my head around it over the last few months. The care involved is incredibly time-consuming and tiring. I feel trapped at times, feel...
  9. Jhettinger

    VA vs Tricare Coverage Discussion

    Just to start this discussion, I am researching What tri care will pay vs what the VA covers.So for instance, if the VA offers me a wheelchair that seems minimal, can I opt out for personal healthcare insurance coverage of a better wheelchair. My experience with the VA has been; the wheeled...
  10. J

    Questions from new member to this forum

    I am a new member to this forum. I was diagnosed with a motor Neurone disease in July 2016 after complaining of weakness in my legs and arms that commenced in 2012. On top of that, I was stricken with Guillain-Barré syndrome in September 2016. After 9 months of hospitals, rehab facilities and...
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