Hi All. Very new to all this. Symptoms started about 7 months ago. After 4 Dr.s and 3 states they confirmed what I suspected from the beginning. ALS. Got to say it's harder on the people around me than it is me.
Got a few questions.
1. What legal forms do I need to prepare while I still can...
Could you help us understand a Dr's responsibility to a patient when a drug like radicava is approved for treatment. We don't know if my husband- who has slow progression at this time - should begin treatment.
Thankfully -we have great medical insurance at this time- so finances aren't the...
ISO some medicare help here. My husband is newly diagnosed and being seen at the John Hopkins Clinic. At our appointment last week, it was suggested we go ahead and get the medicare paperwork in and started. My husband is very early stages and only has some weakening in his hands and arms...
It's been a while since I have checked in. Life for my son and myself, as caregivers, is almost unbearable. My PALS is totally paralyzed from neck down. He has a feeding tube and is on a ventilator. He seems a little more depressed lately. Still doesn't sleep well at night so my son and I...
breathing
caregivers
cough assist
cure
death
depressed
disability
feeding
feeding tube
food
hope
insurance
kids
life
love
money
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paralyzed
research
sleep
treatments
ventilator
work
wrong
Hello all,
I never in a million years thought I would be joining a group here, but turns out it is looking like this is the next phase of my life. I started noticing a little weakness in my right leg, especially getting into a vehicle for ie. Also around the same time, I kept wondering if...
2nd opinion
advice
age
atrophy
back
brain
denial
diagnosis
emg
falling
foot
foot drop
grief
hip
insurance
lead
life
lyme
mnd
muscle
research
stress
symptoms
weakness
wes
Hello Everyone, we’re having a really rough day today so I decided it’s time for me to reach out. My husband got his first diagnosis 5/21/18 and a second opinion confirmed it 6/14.
He started noticing weakness in his arms on one side just after Thanksgiving. It then progressed to the other...
als
angry
brain
dad
diagnose
diagnosed
diagnosis
emg
family
hearing
husband
insurance
mri
neurologist
newly diagnosed
planning
problem
reading
sad
second opinion
support
testing
tests
therapy
weakness
work
I've been taking Aciphex for 20 years. About five years ago, none of the insurance companies would pay for it and I started buying it for cash in Canada through their wonderful online pharmacy. The pharmacists there were wonderful and send me e-mail reminders when my prescription was due...
My dad recently passed after a 2 year battle with ALS. I was his only relative, so by default became a caretaker. I spent hundreds of hours on VA benefits and my Dad's wish was for me to help others. I found PVA and DAV in my area to be of very limited help. They basically got me started and...
als
dad
death
disability
electric wheelchair
family
grant
immediately
info
insurance
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life
life insurance
manual
military
pain
questions
relative
research
second opinion
va benefits
van
veteran
veterans
wheelchair
work
Hello all,
Let me tell you my whole story...
I started having pain(muscle ache) in my shoulder March first. Went to a redicare Dr on March 11th and let the Dr know the muscle pain is also in my arm as well as shoulder and moving around. Was told this was myalagia and to follow up with primary...
arm
back
enzymes
falling
fatigue
free
hope
insurance
muscle
neurologist
night
pain
research
scared
shoulder
story
stress
swallowing
swallowing issues
symptoms
test
tests
twitching
wanted
weakness
wrong
(I questioned whether to post this or not. Some may take it wrong but it may
bring some conversation to this sub-forum. And… I’m not sure what
sub-forum it belongs. Mods… move it if need be.)
This is about decisions many of us face. First, I no seek of sympathy, Ann and
I have been very...