Dears,
I am looking Tobii eye gaze dynavox for my 5 years old daughter, she has brain trauma and Tobii would be great for communication. But we do not leave in USA and insurance doesn't cover it. If you have one for sale pls contact me.
All the best
Maria.
Bob Stansbury, also known as WheresWaldo, passed on July 22, 2018. He and his wife, Therese, were members of the ALS Support Group in Chico. I met Bob through this forum and we realized the connection during a Support Group meeting. He was diagnosed years ago but remained upbeat and very...
I’m a little over two years post diagnosis and was recently denied insurance coverage for a shower/commode chair. I am a federal employee and have been very happy with coverage thusfar (GEHA). As I prepare to appeal the denial, I’m wondering what others’ experiences have been with insurance...
Hello all,
I have lurked around this forum for a little while and have read tons of threads and the stickies. I have been avoiding posting for quite some time.But here it goes.
It all started when I noticed some twitching in my calves.To which i saw my PCP about and she reffered me to a...
I apologize for the length of this post but I hope it might help others who have to take their PALS to the ER.
We were in the hospital from Thursday morning until noon on Saturday. As I have posted previously the trip to the ER was recommended by our health care nurse based on a false oxygen...
I don't use bipap during the day, but looking to the future, I noticed the permobil PWC loaner I have has no storage place where you could put the trilogy if you were using it in the wheelchair. I'm told the PWC they are ordering for me through insurance will be similar to this one. So once...
As many of you know, I have 4 wheelchairs, one of which has been funded by private insurance. The other three we bought used for particular purposes.
The wheelchair funded by insurance is a Permobil C500s VS, which was ordered 4 years ago this month and arrived in January of 2015. It has over...
Hello. I Live in Orlando Fl. I am 52 years young seeking a Neuromuscular specialist in my area. I have been getting passed around from physician to physician for 7 months now.
My Primary care Physician team feels as helpless as I do and they have worked hard to get me answers.
7 months ago...
My PALS is getting a PWC in a few weeks. He is trying to decide if he wants the forward tilt. He can't transfer at this point. Would this help with making himself more comfortable with changing positions? Insurance isn't going to pay for it so we need to know if it is worthwhile to add it to...
Firstly, I want you guys to know I appreciate you taking the time to read my story.
I am a 37 year old male, father of a two year old and I am very concerned about the probability of having a bulbar ALS diagnosis.
Symptoms and dates:
1st week July 2018: buzzing in brain for 10 second...
als
arm
atrophy
back
bulbar
confused
diagnosis
emg
father
insurance
lyme
muscle
neurologist
onset
pain
shoulder
speech
statistics
story
swallowing
test
tests
twitches
twitching
weakness