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Veterans with ALS need to know that in order to get their special monthly compensation (SMC) increased as their condition worsens they will need to get a Disability Benefits Questionnaire (DBQ) filled out by a doctor of your choice or submit for a C&P exam arranged by the VA. My recent...

I know there are many of you who possess more expertise than I. Today I had a very scary situation getting ready for the day. Doing my final bathroom preparations I became more shaky and wobbly than usual. I went downstairs right away to get breakfast and sit down. Before I could get...

Hello All: Before I begin, I want to say two things: thank you and I’m sorry. Thank you for the peace of mind you bring to scared individuals like myself each and every day, despite the great challenges you face. That selflessness amazes me. Secondly, I want to apologize for starting a second...

I will be attending my first Clinic Visit next week. I was diagnosed in January but received a second opinion from my current doctor several weeks later. In May, I did have a follow-up visit with my doctor concerning my first three months with Radicava infusions and to check my progress. My...

I researched the forum for information, but couldn't find anything specific to this topic. My coughing and choking started prior to my diagnosis last October. It was chronic. I have been using the cough assist machine since this past April. Over the last couple of weeks, my coughing has...

Hello all, First I want to thank you for the plethora of information I found in the *Please Read* posts. It answered many of my questions. I also found some helpful info reading other posts. I am a rationale 47 year old Registered Nurse and am working on my PhD in nursing so I don't want to...

Asking for any information on PEMF treatment. Thanks.

As the last of my birth family, I am writing a Memoir of stories and history no one living knows. I consider it a Legacy to future family. I am not a "writer", nor eloquent, that's not important in a first draft. Only the information. Is anyone else writing one or interested in doing so? May...

Hi, I’m 20 years old. Over the last three months I’ve been experiencing a range of symptoms such as weakness and twitching all over my body particularly in my arms and legs which is usually visable when I lie in bed . In addition to that, I’ve been having congestion around the nasal cavity and...

If you are or are likely to be FALS, have ALS and have not been gene tested please do so unless the family mutation has been identified It is becoming really important for practical reasons that your family members have that information. There are multiple mutations and there are some that...