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About 18 months ago my Dad started losing weight. He was eating normally but continued to lose weight alarmingly fast. Doctors thought it was down to a cyst on his liver so in December 2016 he underwent an operation to remove this cyst. When he came around after the aneasthetic He had...

There has been a request from the admin of an FB group with a focus on MND research. They are looking for a person proficient in written Urdu who might be able to help a PALS who would like assistance with understanding some things about the approval of Edarivone and its availability outside of...

Hello to all, This is a long post and I hope the moderators will allow me to post this as a message to all those coming here with concerns over ALS. This is specifically for those with muscle twitching who have been cleared by a doctor. I know there are some people here who legitimately...

My husband was diagnosed on February 13, 2017. We will have our second clinic visit with the team on May 10. My husband has been using a walker since mid-March. Even with the walker, he struggles. His legs will wiggle and wobble, but not move. I am looking for advice. Who will suggest what we...

Hello. Thank-you all for taking the time to read this. I've posted on here before over the past year or so (I think that's the timeframe) but noticed that my threads have been closed so have started a new thread. I hope that is okay. Very briefly, I have a history of some symptoms that look...

Hi Everyone, As much as I'd rather not be here, I am. My mom was just diagnosed this week with limb onset ALS. We previously suspected it in December, so I created my profile back then and have been reading as much info as possible on here. Now it's unfortunately confirmed. I look forward to...

Hello, All. Male, 20 yrs old. I have visited forums last year and explained symptoms but was told I had no reason to have ALS. However I have been experiencing other symptoms on occasion. - I bite my tongue lightly sometimes when I either talk or not talk (starting to develop a scalloped...

Hi I joined this forum last year then forced myself to stay away to try and control my anxiety. I received a very helpful response to my question about symptoms in my leg, a response that eased my mind considerably, as I could still do many of the things that were mentioned. IIRC they were...

Anyone been through this process recently? I have a few questions if so. I have received the paperwork needed from the VA for approval. 1.Is there an expiration on this? The reason I asked is that I do not have a wheelchair yet so height requirements are unknown. 2. I think that I need...

Hello! Would be grateful for any input. My husband is having a real struggle with respiratory stuff -- especially phlegm. A huge struggle to get it up...don't think I have to go into detail for this group, right? Anyway, we've found a system that sort of keeps it under control, involving...