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My PALS received his Bipap machine yesterday. It is a Philips "Dream Station" Bipap S/T. It is from the VA, so we have added layers of admin when dealing with info etc. so I thought I'd ask here first. The respiratory tech who brought it said my PALS is to wear it at night only right now...

I have been restraining myself from posting on an internet forum until i had all the medical info i needed help to moving foward with a diagnosis. i dont want to waste anyones time because i know a lot of people from this fórum are dealing with this horrible disease. Im here on behalf of my...

This was on the stickies. Where did this info come from? Im in the process lf being checked out neurologically and ALS is not off the table. I passed my first EMG done a month ago but since then, I’ve experienced localized fasiculations (2 weeks straight) and after it finally stopped, my left...

Hello, Did not know if this was the appropriate category to post in, so my apologies if that is the case. Have perused/read several threads on here for months now in search of some guidance. I have two specific questions/topics: 1) Had to move for work recently so finding a new GP (first...

I am grateful for this forum and appreciate all the helpful info and camaraderie....hello and thank you!

I was so overwhelmed at my first clinic yesterday, that I forgot about asking the neuro about some numbers that he kept giving to the resident, as the neuro was examining me. If anyone can clarify or explain this, I would be very appreciative. I won't be seeing the neuro for a few weeks or I...

Hi All, I'm sending positive thoughts to all. I read the stickie but I have questions. I have had a foot twitch start after I saw my neurologist, it is persistent, but I have twitches elsewhere too (that are not persistent). I am very very nervous. My nerologist tested my reflexes (normal), I...

Hello Again.. So I had additional follow up in April 2017 with neuromuscular specialist who performed another full work up including EMG and NCV. Was given confirm at that time that what ever is causing my symptoms, fasics in legs and arms and feet, pain in hips and arches, extreme stiffness...

Hello everyone! I am a 21-year-old Caucasian male with no history of ALS in my family. I have an anxiety disorder, along with hypochondria - I am reluctant to say that latter but know this is pertinent to disclose. A week and a half ago, I felt perfectly fine, no symptoms of ALS. Then I noticed...

I was recently diagnosed with Onset Bulbar ALS. The question came up about history and I told the Neuro that my grandfather, a cousin and 2 of my grandfathers nieces had it. My understanding is that to connect it as familial my grandfather would have had to had a genetics test for them to be...