I had hip replacement surgery 6 years ago that left me with drop foot and a leg completely dead from the knee down. By dead I mean no feeling and no muscle activity. My body can no longer circulate fluids and the foot swells and starts turning black when lower than my heart.
I was told under...
I am a 22 year old male with no family history of ALS or neurological disease. I have been to several doctors who have run blood work, a CT scan, and a skin biopsy for my rash. They have all been normal except for a high vitamin b12 level due to multivitamins I was taking according to my...
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Hello PALS
I have been doing some research into NurOwn as a therapy for ALS. The problem I have is that I'm not a scientist, and the published reports leave me a little confused as to what is actually going on. I was hoping that a few people on this forum may have undergone the trials to date...
Hello all,
I have a friend named Mike who met with an accident 3 months ago. He had minor head injury and was temporarily paralyzed for 1 month. After a bed rest for 1 month he had great improvement in his health. Recently he has difficulty in lifting things. He is not even able to lift a pen...
Hi folks, just a note to bring you up to date, last night had a full meal for supper, shepherds pie, large bowl of ice cream and a glass of Pepsi. This morning a large bowl of fruit cocktail, not bad for a guy that had a feeding tube put in a year ago because I could not chew or swallow. My...
Hi,
My brother was diagnosis with ALS last July and I've been posting here since then – he's young, has a young family, and is the main caregiver/child rearer of the family – his wife works full time.
His little kids adore him. Its been very tragic seeing him unable to lift up his little girl...
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Hi guys.
I am from India and this is regarding diagnosis of my father. He is now 63 years old.
It all started about 1 year back when he started complaining about trouble in grasping small objects/ starting car with keys and holding spoons.
EMG/NCS confirmed there is a motor nerve problem in...
Hello, first off I have a friend with ALS in the advanced stages. I have a lot of respect for him and others who have been diagnosed with this terrible disease.
My story is I'm 39 years old and in August this year I was diagnosed with Idiopathic Brachial Plexus of the upper right extremity...
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Last Thursday, my 60 yr old husband (husband of 6 weeks, I should add!) was told by a neurologist that he has ALS. His only symptom is weakness in one hand which came on suddenly in June 2016. At that time, his PCP ordered an MRI and he was promptly sent to a neurosurgeon who diagnosed him with...