improvement

My mother found out that she’ll be able to start radicava soon and Medicare is going to cover the entire cost! She also had a feeding tube put in last week at Mass General and it went well. She can still eat relatively normally but gets tired after a while and has lost a little weight. She...

Not without a fuss, mind you. Mayo found an antibody (glycine receptor antibody) and wanted to try several treatments for limb variant stiff person syndrome. Alas, nope. I felt the fourth trial improved my balance (quite a lot actually) but they can see no improvement, plus, everything has...

Hi, I am just posting to help others with the same anxiety I’ve gone through this year. I posted before with flaccid in a week and lmn sign. I’ve seen many top neuros and they agreed that I had something going on but couldn’t find the answer. I also received great advice from senior members here...

This new thread's purpose is to document results after taking Radicava.

I’m a paramedic and this January. I started having symptoms very vague almost stroke like symptoms that took me to the emergency department on several occasions. Since that time I’ve gotten progressively worse. I’ve had every blood test imaginable and probably MS was the diagnosis. During this...

My Dad is newly diagnosed at 59 years old. He’s always been in great shape, on a hockey team, long distance bike rider, and golfer. When his hand weakness started a year ago he slowly began to lose strength in hand and then some muscle atrophy in same arm along with twitching. My question is...

Well I can't believe I came back to this forum but after 6 months I'm still without symptom improvement. I haven't been diagnosed with anything. I gave my heart to these symptoms being a stress reaction and or anxiety, I realize stress can cause a lot, but after 6 months nothing is better. If...

I just wanted to ask any users here how it is to have a tracheostomy. I have a feeding tube and while it is a massive improvement to choking, it is a big commitment. The tube site needs to be managed and there are going to be complications (Granulation tissue, pain, leakage and infectsions)...

Hello. I want to first say thank you for any information or insight you may be able to give me. I also wanted to say that my thoughts are with you all that have been affected by this disease. I am concerned due to a few reasons. About a week ago, I noticed something was "off" with my left foot...

I follow Dr. Bedlack on twitter and this popped up yesterday....really interesting. Makes me want to try some of the supplements they mentioned: "The odds of taking curcumin, luteolin, cannabidiol, azathioprine, copper, glutathione, vitamin D, and fish oil were higher for cases than for...