ice

  1. G

    Permobil M300 PWC too bumpy

    I received a Permobil M300 loaner from my local ALS Society a few months ago. I've been having fun with getting out and about, especially now that the weather is nice. But one problem is that the ride is really bumpy. For example, when I go over sidewalk cracks it feels like I'm really hitting...
  2. jethro

    Software companies, do they donate?

    we saw bill gates in ice bucket challange, nominated by zuckenberg. with just 10% of money they have, they can find a cure. have no info - did they donated? nothing is a such a problem but money...
  3. A

    Wish I never watched ALS videos but....

    Hello - I am a 38 year old male 6'0 173 lbs Medication: Adderall, Zoloft, Kratom I been noticing lately that I get very tired when walking up hills or stairs. After the second flight my thighs really start to burn. I am not out of shape but I also don't work out regularly. I have about 2...
  4. B

    Christian faith and hope in song.

    It’s nice to share spiritual things one finds meaningful in and to their life. The following song was sung during a live-streamed service on the computer. Finding it meaningful, I thought you may also. The illustrations are lovely. Scan and paste the code into the address and Enter. Turn...
  5. M

    Bulbar als?

    Reading through this forum I do feel a bit silly posting this, but thank you for anyone taking out any time to respond, it means more than you know. For about a month and a half I've been having issues swallowing. I swallow, and the food stops like partway down my throat, or at least some of it...
  6. A

    cant take this anymore

    hello everyone ,i am a 23 year old male from india.My problems started from november,2017.It all started with twitching in my face that continued for a month after which i started having some problems with my speech and my hands .i looked up on google and ALS popped up and naturally became...
  7. C

    Gaining strength back in weak hand/arm?

    My Dad is newly diagnosed at 59 years old. He’s always been in great shape, on a hockey team, long distance bike rider, and golfer. When his hand weakness started a year ago he slowly began to lose strength in hand and then some muscle atrophy in same arm along with twitching. My question is...
  8. L

    Symptoms, awaiting neuro appointment

    Hello all! I have been having some strange symptoms for the last month. It all came about suddenly and I’m concerned. All started May 29th, ceased for 10 days then symptoms arose again. Symptoms: - involuntary thumb and middle finger twitch/movement (this lasted for a week and hasn’t...
  9. KimT

    Aciphex no longer available

    I've been taking Aciphex for 20 years. About five years ago, none of the insurance companies would pay for it and I started buying it for cash in Canada through their wonderful online pharmacy. The pharmacists there were wonderful and send me e-mail reminders when my prescription was due...
  10. A

    Could this be als?

    Dear all, I am 27 year old male. For the past 3 month i started to have severe panic attacks and depression which is caused by my hypochondria due to feeling very sick all the time. (Occasional difficulty breathing, tachycardia, feeling hot, sweating, tremors and low grade fever, losing 15 kg...
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