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Not without a fuss, mind you. Mayo found an antibody (glycine receptor antibody) and wanted to try several treatments for limb variant stiff person syndrome. Alas, nope. I felt the fourth trial improved my balance (quite a lot actually) but they can see no improvement, plus, everything has...

For the past month I've been using a power wheel chair loaned to me by the local ALS Association that is exactly the same as the one that is being ordered for me. My wheel chair is a little less than 25 inches wide and if i go slowly it does fit through all of my 28-30 inch doorways and...

Hello to all, As I’m sure everyone here can understand, I never thought I would need to post on this forum. My only knowledge of ALS was through the ice bucket challenge! My 70 year old mother was diagnosed with ALS at the beginning of August this year. I first noticed something wasn’t quite...

I hate to bother each of you, but wondered if you had any insight. For the past couple of months I have had a Globus sensation, excessive bleaching, feeling like my belches are getting stuck, gurgling sound in throat, some regurgitation and the feeling of pills being stuck in my chest. I also...

Hi all! Thank for the creation of this thread. I've been lurking for a while, but have a few concerns now... A few years back I would notice fasciculations on my calves when getting home from work. I thought little of them at the time. Fast forward 2016. I was bit by a tick a contracted lyme...

Im truly sorry, even though reading ''before posting post'' I just can't bring my self to calm myself down. Im suffering from increased anxiety day by day and im getting more afraid of me actually having this disease. Sub concuisly its like I know I don't have it. But today i think about it...

Thank you all very much for your help some months ago with my initial post. https://www.alsforums.com/forum/do-i-have-als-als/41898-am-i-overreacting.html Wanted to provide an update, as after weeks of not worrying about this, new symptoms have me quite concerned. I woke up one morning a few...

I had my first appointment with the physical therapist today. I was with him for an hour and a half and he did a thorough evaluation. He has worked with MS patients (one was there at the time I signed in) and he actually requested more information about ALS. He understood the disease but...

Hi All, what a great site and good support, I've read a lot already. late last spring I started to notice tightness in my forearms, for no explicable reason. Also had a few calf cramps but didnt think much of it as I've had those before. Early august I had a period of frequent twitching of...

We went to the Grand Canyon for a week at the end of April. It has taken forever to get through the pictures and get them ready to share with you. The trip was wonderful and the weather was really very nice. The only real issue we had was the batteries in my wheelchair were "replaced" at the...