Hello,
Something that's really worrying me is range of motion exercises. We went months with my 87 year old mother being bed-bound before I realized we needed to push for a PT to asses. We got a simple group of exercises last month, so that's good (I hope!).
I do have some ROM exercises I...
Hello Everyone,
I would like to start off with saying that I have utmost respect to all of PALS and CALS who despite the illness did not forfeit and are fighting and living each day as happy as it's possible. I have lurked the board for 2 months (read ALL stickies) now and I've decided I...
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Hello guys, I need some help here. I'll try to keep this as short as possible and before I start I will say that I've read the sticky.
I'm a 25 year old male and for the last 11+ months I've been experiencing some really awful symptoms that (with some direction from my GP) has pointed me in the...
Hello all, I've been combing the forums for a month or so, mostly because I'm not sure how to manoeuvre around here. I've been learning a LOT from forum, so many helpful people, and especially I've been feeling like I'm getting to know some of you, if not by actual name, then by user name...
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Hi y’all thank you for taking the time out to read this ... I have been living in fear for almost 3 years and I feel like I have to post here now .. My worries Started back 2.5 years ago when I had body wide twitching.. since then I started to notice how sometimes I slur a word or 2.. Since that...
Hi
6 months ago I got very sick lasted a month. Couldn't breathe hard time swallowing and talking. Lost 9 lbs in a week. Got rubber legs. Basically became wheelchair bound because every time I would walk I couldn't breathe. They put me on a ton of asthma meds which made me worse. Testing heart...
Hi I was wondering if anybody on here could help me. My name is Gerald, I am a 19 year old Caucasian male. I am concerned that I might have ALS or some sort of other motor neuron disease or neurological disorder. Back in August, a twitch developed in my face where just below my left eye almost...
I was personally very grateful to see a camp offerred to the minor children and grandchildren of PALS. As a CALS I was overwhelmed with gratitude when I saw the notice. Just wonderful, I thought, I wept and sent the notice on to my daughters in law who might want to participate with our...
Hello everyone. I'm new on this forum, and I decided to ask some questions after months spent being worried. I'm 29, almost 30 years old.
I had bad feelings of weakness to my left Side of the body and fasciculations all over my body for months. I had a neurological exam yesterday, everything...
Hello
First I want to say I am so sorry for the affects this disease has caused on peoples lives.
I have neurologist appointment but I am about a month and half away from it. I have some symptoms that I would like to run by to see if I can rule out ALS
So I didn't really notice anything...