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    More Than Our Stories 2019 - A different kind of advocacy conference

    Please consider participating in the second annual www.MoreThanOurStories.org Feb 12-13 in Washington, DC. This is a different kind of advocacy conference. No Powerpoint. No formal presentations. Lots of healthy discussion about government policies that can be improved for people dealing...
  2. P

    Scared and sad...

    First off, thanks to everyone on these forums. I have been visiting a bit as I'm quite convinced my girlfriend of 10 years has developed this terrible disease. A year ago today we were on our snowmobiles in northern Maine... it seems impossible that we are where we are right now. Sharon...
  3. C

    Tongue Quiver

    Good afternoon, My name is Chris and I am a 29 year old male. For the last 4 months the sides of my tongue have quivered non-stop. The best way to describe it is as if the sides of my tongue move left and right at an incredibly rapid pace while the middle maintains it's placement. I can not...
  4. N

    I feel like i lost connection with my own body

    Marry Christmas Everyone! Sorry for the long post and bad English. To know my story you have to know a bit of my background. I was born in the Congo and lived there until age 7. I just turned 30 and things haven't been going to well personally to be honest. As you may or may not know, Congo...
  5. C

    Probably concerned about nothing

    Hi, Firstly thanks for anyone who takes time to respond, Ive read the sticky and tried to avoid posting until now but I'd just like opinions from you experienced people. After that I wont be a person the posts and post, I assure you. So, me, 34 year old male keep pretty fit and healthy and not...
  6. A

    Controversial neuro exam

    Thank you in advance for reading my post and apologies if some of my questions are not consistent with the sticky notes. I am 27, male. For the past four months I have perceived weakness and feeling of numbness in left arm and leg which tend to come and go. The numbness is usually more...
  7. T

    Worrisome symptoms - should I be concerned?

    Hi, first of all - thanks in advance for spending some of your precious your time reading my long story. I'm 25 and last 3 months of my life was the worst (so far) , fear-ridden time I have ever experienced. Everything started on the 1st of October with a constant, mild headache with painful...
  8. C

    Abnormal EMG/Twitching- Any hope?

    Hi all, sorry for the long post but need to get it out... I have been lurking for a few weeks now. I have had twitching- mainly in the calves/thighs/butt- for 2-3 weeks now. Had been mainly in my quad next to my knee but rarely it twitches there now. Legs are pretty much non stop at rest...
  9. L

    Please Help. Hopeless

    I have had constant twtiching in both calves for going on 3 months. i also have twitching randomly all over my body including my tongue. all the muscles twitch at rest and when i get up to walk or move around my calves stop twitching. i get radnom ones in arms, hands, tongue ( at rest ), butt...
  10. K

    Nitty Gritty: Commode and Water Cleaning Question

    Hello all, Sorry for the many posts lately. I blame all the nice help I've been getting. Does anyone have a suggestion of how to use a water hose or spigot, or something ______________ that would allow my PAL to *not* use a reacher stick, or wipe with her hand and toilet paper? She has...
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