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hi, i am new here and want to apologize ahead of time if i ramble but i am looking for input on what is going on with my husband. my husband is 40 years old and has had twitching in his arms for over 2 years, he has never thought anything of it just thought it was a weird twitch. in january in...

Yesterday my RT from from the local oxygen and Trilogy supplier, went to exchange a refurbished Trilogy 100 for mine. Mine has over the number of hours before overall. After the " new ventilator" was fastened to the back of my wheelchair and the settings were being input to match mine, I asked...

I'm writing this for my husband who refuses to join forum. I will forward your responses to him! I'd like to help my wife be able to stay asleep at night longer than two or three hours at one time. Her chin strap needs adjusting then As well as a pillow or two. She says this is normal for a...

This comes up quite often. I have just had a couple of CALS report serious success with this product. Of course I'm not allowed to link so go to wellnessbriefs dot com The briefs (and side-tabbed diapers) use the same technology that NASA uses for the astronauts when they are in their space...

The last week or so my PALS would have some coughing after finishing a gravity tube feeding. It seemed as if some formula was coming up by reflux and causing him to cough. It was brief and would resolve. I made sure he was at 45 degrees at least while receiving a feeding and for 45 minutes...

Hello there, I'm really sorry to bother everyone here with this, I have really conflicting thoughts on this. So I'm 26 year old and recently (1,5months ago) finished med school, after I wrote my last exam I started to have a twitch in my thumb, it felt weak and strange, since I knew what it...

Let me begin by saying; I do appreciate anyone who is taking the time to read this. I also realize you are not doctors but individuals w/ unique experiences through this evil disease. I respect each of you and all you have to say. 1/ When you started having symptoms•concerns who did you speak...

Hi all, I am not a Dr. and I don’t play one on TV. I’m just a CALS who pays very close attention to what meds my PALS is on and how they affect him. I want to relate something I’ve learned so that you may be aware of a possible side effect of this medication. Brian has been on Robinul for...

I have been lurking for a couple of months but noticed when one asks a question that background is requested so thought I would start with that. On March 16 of this year I went to work (warehouse) without a care in the world. I was a healthy, active hiker with a love of nature and a crazy dog...

My husband seems to be coming down with a cold and I have no idea what to do. This is the first illness he has gotten since diagnosis a year ago. He is on a feeding tube and a bipap at night (12-14 hours). Last time it was tested his breathing was around 50% (don't have raw numbers). He has a...