hours

  1. R

    Is this depression or something else

    My pals began a new behavior last week. She has been dealing with a lot of losses - speech, ability to swallow food, choking on pheglm etc. and started sleeping more and more. Sleeps 11 hours at night. Gets up and tries to drink a little coffee, goes to bathroom then gets back in bed. Family...
  2. C

    Right arm weakness

    I am 22 years old, with a recent history of extreme health anxiety. I recently moved back home, and started a job on night shift working 70 hours a week. Ever since I started working nights, which is the first time I’ve ever worked nights, I noticed my left eye twitches almost non stop. My...
  3. swalker

    Grand Canyon Trip: Fall 2018

    Lori and I had the opportunity to go to the Grand Canyon this fall and had a wonderful trip. As I have posted before, the trips are getting harder, so much so that I have considered cancelling each of the last three trips. I am so glad that I have not! The weather was spectacular and I was...
  4. D

    Suggestion for Fatigue?

    Fatigue is what took me to insisting on testing. I now get exhausted even taking a shower. Anything medication wise that will help? I am using a Trilogy for 3 to 4 hours at night and also use it when tiring during the day. Interestingly, I have always been a “night” person and still seem most...
  5. Trippy

    Nuedexta as needed?

    Does anyone take this drug as needed, for example when planning to be around people, etc. or take it on a different schedule than manufacturer recommendations? I did a search but couldn’t find any information. I started a half dose (one pill) last week and within 24 hours noticed a definite...
  6. Nuts

    1 Month Warning...

    1 Month Warning. That's what I just gave the family, via the private family FB page. One month of no quality, coherent time with Matt and we will be taking him off the vent. He was clear headed about a week ago just long enough to tell me that crazy communication doesn't count, so when he's...
  7. B

    Constant use of Bipap machine

    Hi Everyone, Haven’t posted in about a year. My father was diagnosed approx 18 months ago with ALS and he is in the final stages. He has trouble holding up his head, can barely walk on his own, not eating anymore on his own and getting all his nutrients from a feeding tube. Just this week his...
  8. H

    after trach surgery...

    my mom did the trach on last Friday. she was in ICU for 1.5days and transferred to PCU(progressive care unit). after few hours of her surgery, she started to bleed a lot so had to go back to surgery room to control the bleeding and to chech if everything is okay. next day of surgery, she was...
  9. Nikki J

    An interesting trial

    Not a drug trial. The interventional is surgical. You have to live within 3 hours of a site Using thoughts to control arm hand movements. Mass General is a site and they just emailed about it. It looks very cool. Fortunately I don’t need it yet but I would look into it if I did...
  10. P

    humidifier for Trilogy

    My husband, Frank, has a trach and uses the Trilogy with attached humidifier only at night. Saturday we lost power for 5 hours during the night. The Trilogy switched to battery but the humidifier was off due to loss of power. He claimed that he felt like his trachea felt like it was burning...
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