hospice

  1. Q

    Feeling guilty

    Hi, My mother has als and she is in her late stages. Is it wrong to think that i want this to be over? I just feel so stressed seeing her like this and I am tired and I just want to continue my life. I have a 5 month old baby and a wife and I feel my life is put hold on. I just feel guilty...
  2. L

    bed remote control

    My mom isn't able to push t he Buttons for her hospital bed remote control. She can't sit up or lay her bed down. We help her during the day and have looked at some alarm systems, so that we can help her during the night. But she says she is afraid her saliva will get pooled in her throat and...
  3. N

    Hospice Care on a Vent

    Hospice Care on a Vent or Home Health, not Pvt Duty Hi All, Tossing this out there to see if anyone, in any state was able to find Hospice Care if your PALS was vented. Or Home Health, not Pvt Duty. I currently can’t even get Home Health in for wellness checks. If you were able to get that...
  4. G

    Newly diagnosed

    I was diagnosed by a neurologist about 5 weeks ago after two EMGs and MRIs confirmed his suspicions. I'm not sure how long I've had this as I was in treatment for Lymphoma in 2014 and never fully recovered from Chemotherapy. Now that I have done some research, I think I was passing off some...
  5. A

    cough assist plus vest really helping

    the hospice nurse arrived just after my daily vibrating vest treatment followed by cough assist. She was amazed at how clear my lungs sounded. We are able to remove lots of mucous after the treatment and I strongly believe it is buying more quality time. it took time in the beginning with lots...
  6. N

    Hello from Greece.

    I really dont know how to begin what to write. My mum was diagnosed wiith ALS in April 2018 after 4 months of tests and visits to every doctor there is. Finally she was diagnosed in a University hospital. We are a veru close family. 5 kids 9 grandkids. We are in a state of shock. Mum was an...
  7. B

    Transitioning

    For 3 years my wife has fought with everything she has to make ALS take things from her. Anything that could help make life easier was pushed to the side until it was the only option left. Her PWC sat as a dust collector for seven months, although for the last month, she was being pushed around...
  8. A

    made hospice decision

    my earlier thread on this has closed since it's taken me so long to decide. Maybe a mod can link to it. yesterday I decided it was best for my family to start hospice. My husband is realy struggling with this end stage, and I am hoping hospice support can help him get through this. I get to...
  9. L

    My Dad Died April 9th

    It has been such a busy time and I hadn't had a chance to post earlier. He was diagnosed 3/23/2017 and progressed rapidly. By May 2017 he was on AVAPS, July 25th he got a feeding tube and by December he had pneumonia and after being intubated for a couple of weeks went home on the Trilogy. He...
  10. S

    End Stages

    Hello, My mom is in the end stages of ALS. We had in-home hospice for a week when we decided together to go to the in-patient facility so she could be more comfortable as the meds at home were not doing enough. We’ve been here almost a week now and she had been more comfortable but now I am...
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