hospice

First, when Eileen was on hospice, I couldn't share all the details of her passing, even now some of it is more than I can talk about on the forum. When the time came, with two pastors, family and friends in the room, I couldn't let a stranger make the final step. So, I turned off the Trilogy...

I’m selling my dad’s equipment at a good price and will donate the money to our local hospice center. Buy it all or separately. 1. Tobii Dynavox with eye tracking and Windows 10. Comes with Connect It floor mount AND wheelchair mount. Mounts never used; Tobii only used during initial demo...

Hi everyone, thanks for taking the time to read. I posted a couple weeks ago about my mom who is progressing rapidly. She is continuing to progress after her diagnosis on August 24. Most of her words are not audible now and she is getting weaker with transfers from bed to chair etc and is...

7 1/2 years its been now. from a slight tingle in her left foot to total paralysis took roughly 2 years. very slow decline since then, really where do you decline to? her breathing is compromised, but O2 levels stay up with nightly use of the bi-pap. If it was just us, I'd probably suck it...

Hi everyone, firstly thank you for accepting me in to the forum. I am here to learn a bit more about ALS and to be able to talk to others that are or have gone through this process as it feels such a lonely place to be sometimes. It all started back in May/June 2017 with my partner, who was...

My PALS decline has been fast, making it difficult to get things ready in time. And now the change comes even faster. She has been on palliative care for several months, but within about 10 days, first a UTI, then thrush and another infection in the cheeks and jaws have brought us to hospice...

We aren't there yet, but I am wondering how the VA is with hospice care. My PALS has Medicare also but we have received everything medically needed through the VA with no paperwork or bureaucracy(after the initial claim paperwork) Can someone share how the VA does with hospice? Mary

Hi everyone. My sister is in her last days. Hospice started last Friday. She is now off her bipap. Her pulse today is 47. Did anyone have signs on how much longer we have with her? It's so frustrating that I can't seem to do anything for her anymore. Any advice would be great! Thank you.

This passed 3 years ago and stopped medicare from making speech generating devices rentals. At the time this was a new policy ( before as it is currently devices were purchased and yours to keep) Renting meant if you went into hospice or had to be hospitalized the eye gaze or whatever was...

OK, hospice nurse wants me to double amount of water I'm getting. Don't know if that's tolerable. Starting to put sixteen ounces of water in gravity bag on slow drip. wants me to go from thirty ounces to sixty. Does that seem like a lot? says stool softener and dense food require lots of...