hope

This month marks 3 years since my husband was diagnosed. He is still progressing very slowly, for which I am thankful. His left hand is completely gone, his left arm is weak, and he tells me his right grip is getting weaker. He can still walk, talk, and eat. My caregiving role is currently...

I hope to go vote this week! But how will it work now that I need someone to come all the way into the voting cubicle with me to help me? Normally you legally must go in there alone.

Dear all, Sorry for the mistakes, I'm French. Sorry for the lenght (also going to blame it on the french origin ^^) First of all, i want to express all my love to those suffering with ALS. I know how frustrating it can be for someone who has got diagnosed to see ‘healthy’ people not fully...

Hello, First of all thank you who will read my story. It is hard time for me now and i thought over of other possibilities, that could affect my health, but only bulbar ALS pops up in my mind. Everything started on march. I had a flu type virus for about two weeks and my left face side was...

I've been lurking here for about 6 months, mostly to be able to say, "oh good, that doesn't sound like me!" But, as of September 24th, I became an "official PALS". Not a club I wanted to be part of. My symptoms started with excessive yawning, and the inability to sing. Like I sang a solo on...

Does weight training help with PLS? It seems to keep me strong and I have had very little weakness with my PLS. The only negative is that it makes my stiff legs even more stiff. This is because I have the stiffness from the exercise on top of the PLS stiffness. I hope to hear form TxRR...

Hello everyone. I will try to explain what I have been going thru and any advice would be appreciated. I’m a 38 year old male. I started having dizziness in December 2017. I then had some left sided facial tingling around January 2018. For this my doctor ordered a Mri of brain and...

I keep seeing updates on what seems to be a suddenly and unexpectedly powerful hurricane heading your way. I hope you are all safe where you live, or have already found a safe place to ride it out elsewhere. Take care

You’re all going to think I’m crazy..I know. I promise I’m not chasing this disease. I just want support through my journey. I just want to ask if I could hang around here with all of you, I love all of you. Your stories inspire me and talking to you all makes me feel so much less pain. It helps...

Hello all. Just wanted to thank anyone for taking the time to read to and/or respond to my post. In June, 4 months ago, my shoulder started to hurt. I had to quit my job because of the pain. I was diagnosed with shoulder impingement, and got several cortisone shots, attended physical therapy...