hope

Hi all, sorry for the long post but need to get it out... I have been lurking for a few weeks now. I have had twitching- mainly in the calves/thighs/butt- for 2-3 weeks now. Had been mainly in my quad next to my knee but rarely it twitches there now. Legs are pretty much non stop at rest...

Mar was beautiful, kind, generous, and a fighter. Eight years fighting, not for herself, but for her loved ones. I hope that, wherever she is, luck is more on her side this time. Peace, my darling, I miss you. ❤️

I guess I need to start a new thread. My “Struggling” thread felt like home. However, it’s no longer in the proper category. As of today, things are going well. I got caught up on work stuff as that just keeps mutlipying with out regard to anything or anyone. That was a hugs monkey off of...

I know tons of people post on here scared to death, and the people who read this are probably thinking "Ugh, here's another one" but I'm truly very scared and don't know what to do. Here's my situation: 30 year old female About 5 months ago I noticed a slight indentation on my right forarm, I...

Bob Stansbury, also known as WheresWaldo, passed on July 22, 2018. He and his wife, Therese, were members of the ALS Support Group in Chico. I met Bob through this forum and we realized the connection during a Support Group meeting. He was diagnosed years ago but remained upbeat and very...

My name is Amanda and I am 38. I have had some issues going on and would like your feedback. 1st, I noticed weakness a couple years ago. I went to get milk out of the fridge and noticed a weakness in 1 arm. I had also noticed twitching and started having panic attacks shortly after, which I...

Hello, I want to share with you our story in full. There are bits and pieces all over the forum, but I wanted to gather everything together. My father received a final diagnosis of MND yesterday. My father (60) started experiencing symptoms quite a while ago, around the winter of 2016. He...

Hello all, Sorry for the many posts lately. I blame all the nice help I've been getting. Does anyone have a suggestion of how to use a water hose or spigot, or something ______________ that would allow my PAL to *not* use a reacher stick, or wipe with her hand and toilet paper? She has...

Hello, Something that's really worrying me is range of motion exercises. We went months with my 87 year old mother being bed-bound before I realized we needed to push for a PT to asses. We got a simple group of exercises last month, so that's good (I hope!). I do have some ROM exercises I...

Hello Everyone, I would like to start off with saying that I have utmost respect to all of PALS and CALS who despite the illness did not forfeit and are fighting and living each day as happy as it's possible. I have lurked the board for 2 months (read ALL stickies) now and I've decided I...