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One year anniversary of neurological symptoms - still no answers
Hi everyone. Some background info before we start: I am 30 year old male. I have been diagnosed in the past with: Spina Bifida Occulta Scoliosis (30 degree curve in Lumbar and 49 in Cervical region of spine) Sensorimotor OCD related to swallowing and breathing Testicular cancer which was...- ibustinside
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- age als ankle babinski's book brain clean emg cramps emg fasciculations genetic hiv info insurance lyme mri muscle neurologist onset paresthesia swallowing symptom symptoms tests twitching unsure wanted worried wrists wrong
- Replies: 3
- Forum: Could this be ALS?
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really MND? strange onset? - just some thoughts appreciated!
Hi everybody, It took me a several months till I decided to post and apologies that it got right away quite a long one... Just to briefly introduce myself I am now 30 and w/o any family history of neurological issues. “Past” presentation of: fit, sporty with a stressful and demanding job (so...- bone33
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- abdomen abdominal als atrophy bfs clinical cramping cramps diagnose emg exercise exhaustion family history fingers fvc hiv mnd muscle muscles neurologist onset pain power swallowing symptoms thumb twitching weakness wrong
- Replies: 6
- Forum: Could this be ALS?
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Farewell, Hoepfully..
Hello. It's your favorite pest, tribes. I was able to see my new PC today. She was extremely patient and understanding. I typed up a timeline, and a list of all my symptoms, along with all my test records. She was very surprised that no one has tested my blood yet. So, she ordered a blood...- 12tribes
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- als anxiety emg emg? hiv hope magnesium meds neurologist onset pain stiffness symptoms test timeline tongue twitching vitamin d voice
- Replies: 46
- Forum: Could this be ALS?
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Endogenous retorvirus and HIV drugs
I have heard of a trial that is going to test a combination of drugs currently used to treat HIV on patients with ALS. These drugs are supposed to reduce retroviral activity. I think the drugs are going to be tested on people that do show such activity on a test. I was interested in the trial...- Alex123
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- als cost drugs fda hiv hope insurance test trial
- Replies: 2
- Forum: Research and trials
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What`s going on....
Hi! Sorry for my English but I`m from small country named Bulgaria and we don`t speak English as native language. So i`m 32 y. old and I have very nasty symptoms.. Everything starts 5-6 years ago with twitching from stress... No weakness. 1 year ago I start yawning - maybe 40-50 times a day. 5...- corwin
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- anxiety balance breathing denervation diagnosed emg fasciculations fibrillation finger fvc hiv lyme mnd mri mucus muscles power problems questions saliva scared stress swallowing symptoms tests tongue twitches twitching weakness wrist
- Replies: 29
- Forum: Could this be ALS?
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Scared to death :(
Long story short, my breathing started to become difficult when lying down, but was only getting really bad on some nights, and was mildly present in the daytime. I started to get concerned that something worse was going on so immediately got tested for Hiv, Syphilis (VDRL), thyroid panel, etc...- Restless
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- ache acne anxiety back biopsy breathing breathing issues christmas death decline dementia early fatigue fell finger go away hiv ideas improvement insurance lyme magnesium meds muscle muscle wasting neurologist oxygen possible a story swallowing symptoms tests vision vitamin d wanted weakness weight loss wheelchair
- Replies: 6
- Forum: Could this be ALS?
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A story about falling ill in ALS, the devil´s disease, with reflections and criticism
A story about falling ill in ALS, the devil´s disease, with reflections and criticism you can have as a physician after onset of ALS. Author Ulf Ljungblad MD, PhD - August 2014 ALS is sometimes called the devil´s disease. It usually affects fully healthy often physically very active persons...- ulflju
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- acne als anger angry atrophy candida christmas cmt cold cramping cure cured diagnosis exercise falling fatigue fell free genetic hiv hours ideas idiot improvement information keyboard lead lift medical medicine muscles neurology oxygen problems research riluzol risk shower chair speech student symptoms teenager therapy umn wheelchair work
- Replies: 5
- Forum: Research and trials
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Young 24 years Extremely worried....please help
Hi All, I really appreciate all of your insight and would like to hear what those of you who are educated on this disease and illness might have to say. Firstly, I'm a 24 year old male in Toronto Canada. I should probably start by saying I have extreme anxiety that I do treat with prescription...- young_worried1
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- ability age als als research anxiety arm back breathing bucket challenge choke cramps diaphram driving eating emg fear friend health hearing hiv movement muscle muscle weakness neurologist night onset paralyzed please help research slurred speech speech swallowing symptom symptoms tests tongue twitch twitches weakness worried wrong young
- Replies: 17
- Forum: Could this be ALS?
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A Couple of Questions
Hi All, The reason I am here is to ask a few questions...Probably prematurely, but I can't wait. A few weeks ago, I developed a severe pain in my shoulder and right arm. After a couple of weeks, the pain went away but left my arm very weak. No movement up from the side and bicep. My other arm...- mpnatx
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- als? arm brain diagnosis emg fatigue hiv movement mri neurologist pain questions second opinion shoulder surgery tests wanted weight loss
- Replies: 25
- Forum: Could this be ALS?
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ALS starting in the hand
I would appreciate any guidance or feedback on my moms (age 54) current possible ALS diagnosis. It started for her shortly after a routine mammogram in September 2013, in which she was left in a lot of pain and started having painful brain zaps (which she received medicine for). She has had...- lookingforanswers
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- age als arm atrophy autoimmune brain diagnosed diagnosis emg fatigue fingers hiv ivig lyme medicine mri muscle neurologist newly diagnosed pain possible als pressure shoulder swelling tests thumb treatments twitching wanted weakness work
- Replies: 2
- Forum: Could this be ALS?
