helpful

Hi, I was diagnosed with BFS 2 years ago now. I have continued to have twitching all over my body.. mostly in my calves. I was told by doctors that it was probably caused by anxiety. I tend to be a worrier about it and lately have had some feeling of small twitches in my tongue. I also feel...

Hi everyone, I have received an unofficial diagnosis and am losing my speech quickly, along with lots of respiratory weakness and breathing issues. My voice appears to be going first (especially tongue weakness) and I was wondering how long it took those who have lost the ability to swallow to...

Hello, currently me, a math student from Germany, and some others are researching about ALS. For further investigations we need some Patient information. Here i created a questionnaire which u all can complete. :) Questionnaire It would be very helpful if you (Patients, Relatives, Friends...)...

Hi folks! I have a good feeling about finding this forum! I already found a LOT of helpful information in the german ALS forum, but there's not a lot of people around "living" in the forum, spending time with each other. And that's what I could use, a community where everybody know's what a bad...

Hello....I lost access to my old email address here is a link to my old thread: https://www.alsforums.com/forum/do-i-have-als-als/39181-strange-combo-symptoms.html So I just wanted to circle back and wrap this up for those who may have been interested in my thread. I've talked to a few...

Hiya guys, New to this forum thought i would introduce myself. I have enjoyed reading all your helpful posts. I was having a nosey round but couldnt find an answer to my query specifically so while saying hello i thought i would ask here. So the very short version of a very long story.... i...

I had sought guidance in June and received helpful feedback. I have an update and would appreciate any thoughts. I am a 65-year-old male. In mid-2016, I started to have swallowing issues with food occasionally stuck in my throat. I also started to have intermittent issues where my speech...

Hi All, Firstly I respect the helpfulness people here gives, to worrisome folks troubled with Suspected symptoms. Not surprisingly, I'm here because I recently noticed some and I need some advice if it's a cause of a concern. Thanks in advance. So, it's my Left Tricep muscle group. About a...

Hello all and this is my first post on the forum. Sorry for my unperfect english but i'm italian... :-) Let me introduce my questions... 4 years ago my mum started to have some problems with left leg and especially in walking. She put her foot in a strange way,like if she hasn't the control...

I have clinic soon and I know the issue of a baclofen pump is going to come up again. I believe they offer the pump to all with PLS, but I believe it is more helpful to some than others. So I’m doing my research to find the ideal model for a successful pump installation. Will you take a...