helpful

  1. L

    Reversible breathing issues with IVIG in ALS and MG

    Dear PALS, I've had an earlier thread regarding my mother, who's diagnosis is still uncertain. Both Laurie and Karen were very helpful. A short intro: My mother is a very complex case and has shortness of breath, orthopnea, loss of strength in upper arms and some atrophy of the deltoid...
  2. N

    Hello and thank you

    I am grateful for this forum and appreciate all the helpful info and camaraderie....hello and thank you!
  3. Chincoteaguer

    Acronyms- expanding automatically

    The use of acronyms is especially helpful for anyone with challenging typing skills. On the other hand it sometimes hinders folks like myself who are not yet acclimated to their use. My question: Is it possible to implement a "trigger action" that would automatically expand the acronym when...
  4. D

    Family not helpful

    In another thread I explained that I didn’t think I’d be able to be enough support for my boyfriend who lives with his mom and sister. He and I have been together for 5 years but have been becoming a bit distant since my daughter died 7 months ago. I’ve been needing time to myself . But then...
  5. J

    Curling Toes

    I have found so much helpful information here so I thought this would be the best place to go with this. My second foot is now also dropped, but my toes on that foot curl downwards. This makes walking harder as the toes stub a bit. I am so afraid of falling! Does anyone have this issue? Can...
  6. Nikki J

    Unwanted messages

    Please remember that you can use the report button if you receive unwanted visitor messages or private messages. It is helpful if you do so as the moderators can and will intervene if there is a pattern. Be aware that sometimes the person is messaging multiple members so it is helping others...
  7. K

    Waiting Game! Very Frustrating

    My father was recently (October 2017) “told” by two separate neurologists that he has ALS. He has frequent fasiculations in his legs, arms and shoulders, and his legs are very weak which has resulted in many falls over the past few months, there has yet to be any breathing or swallowing issues...
  8. L

    Other forum's for ALS

    I just discovered Patients Like Me. A lot of helpful advice and tips.Does anyone else go to differ sites ?
  9. J

    Sacred about symptoms and hoping to get feedback

    Hi everyone, I'm a new member. This forum has been very helpful for me in recent weeks, and I was hoping to get some insight on my symptoms. I apologize in advance for the long explanation: My symptoms started in early November 2017 when I noticed my upper lip began to twitch. It also felt...
  10. E

    Experience with dirty wheelchair

    Hello PALS: I am part of a student engineer design team from the University of Toronto. We are working on a project to improve the experience of PALS. One opportunity we found is that when wheelchair users come back in from outside, the wheels get dirty and it is inconvenient to either switch...
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