helpful

  1. wmilo

    Recommendations/suggestions for a hospital bed?

    As the stairs become more difficult, I'm thinking about moving to a first floor bedroom. Any setup would require some expense (at least a new mattress, or an adjustable bed). During a couple of recent hospital stays I was impressed how comfortable the hospital beds were, and thought it made...
  2. M

    Questioning Symptoms

    Hello all, First I want to thank you for the plethora of information I found in the *Please Read* posts. It answered many of my questions. I also found some helpful info reading other posts. I am a rationale 47 year old Registered Nurse and am working on my PhD in nursing so I don't want to...
  3. B

    Ex

    Wish I would have known this in the restaurant on Father's Day. It would have explained why I was lying on the floor so long. Something good came out of it. The nice lady kneeling beside me cradled my head in her hand in such a way that I had the feeling she was a nurse. After some strong...
  4. S

    Symtom Journal

    Hope this is the right place for this question. Does anyone know of a good template that I can use to track my symptoms? I've had a lot of tests (CT, MRI, Blood, EMG, Echo, etc) and have been diagnosed with an UMD (not ALS) but all of the doctors I have seen don't know exactly what I...
  5. J

    Foot Straps?

    I am having a difficult time keeping my feet on my Permobile footrest. my feet get cold and swell a bit during the day so i use the leg lift and recline to help with that, something they recommended to do every hour for 3 minutes. My problem comes when i go back to regular sitting position. my...
  6. M

    Recently diagnosed

    I am a 61 year old female diagnosed in May 2018. Not a fan. Most of my issues are with my legs at this point and I am hoping to return to work (working from home though). Been to the ALS clinic here in Toronto and they were really supportive and helpful. Doing physio. Getting a foot brace for my...
  7. L

    Likely ALS diagnosis, extensive analysis

    My father was diagnosed with an ALS or a very similar condition. He was treated in a third world country, which cannot pride itself with very advanced diagnostics, so I thought that it would be worth to ask for a second opinion online. I'll try to be very concise. 60 year old, male, 80kg...
  8. R

    Update re: Previous Thread

    https://www.alsforums.com/forum/do-i-have-als-als/41324-just-need-relief.html The above thread is my original thread, which has since been closed. Hi, I posted about two months ago with concerns that I had re: twitching and other ailments that were not indicative of anything worrisome. I saw...
  9. R

    leg/thigh pain

    PLS or ALS? This is my first post. I'm 55 years old. I read many posts on here and see that everyone is very helpful. In 1915, I was lying down in bed and felt 4/5 electrical shock type sensations in my right thigh. The last one was the strongest and even painful. They occurred in the...
  10. S

    Protandim

    I'm an "old one" in this ALS world. I've been living with this crazy disease now for over 11 years. It all started in 2007 with my left foot while speed walking my neighborhood. It stayed in my lower limbs until about 2013ish, but now I'm just getting to the point I can not type well, feed...
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