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Hello all, First of all wanted to say that my heart goes out to everyone who is dealing with this, and to those who take precious time out of their day to help others here. I'm a 31 year old male. I've been dealing with serious health worries for the past 3 months, and just to go through...

I wasn't sure if I would post this at all. After deciding I had no idea where to post it but, for me, it feels like a rant/complaint so here it is. Since my diagnosis I've always believed that I should take good care of my general health, get some good sun each day possible, get some light...

To anyone my age worrying, I want to re-assure you trust these experts and stop worrying. If you look through my posts, I was in a absolute panic about ALS. I now know I 100% do not have ALS. I am embrassed I was in such a panic mode about this, and troubled the brave caring souls here. To...

Hi, really looking for ideas about what is going on with my mum. It’s along and complicated story so I’ll try to keep it brief! She’s never been the most healthy of adults. She had a heart attack in her late 40’s, drank too much alcohol and smoked and got little in the way of exercise. She...

Hi 6 months ago I got very sick lasted a month. Couldn't breathe hard time swallowing and talking. Lost 9 lbs in a week. Got rubber legs. Basically became wheelchair bound because every time I would walk I couldn't breathe. They put me on a ton of asthma meds which made me worse. Testing heart...

My dad was diagnosed this past March with ALS but we are sure he had it for about a year or so prior. He just went back this week for his three month check and his breathing went from 86% to 92%. They said that is rare. Anyone else experience that? With that being side he has become weaker in...

Opened Yahoo this morning and there was an article about an Australian man's recent passing from ALS. https://www.yahoo.com/lifestyle/will-leave-broken-body-full-heart-mans-heartbreaking-final-facebook-post-inspires-messages-love-gratitude-165901361.html

I was personally very grateful to see a camp offerred to the minor children and grandchildren of PALS. As a CALS I was overwhelmed with gratitude when I saw the notice. Just wonderful, I thought, I wept and sent the notice on to my daughters in law who might want to participate with our...

This month marks 3 years since my husband was diagnosed. He is still progressing very slowly, for which I am thankful. His left hand is completely gone, his left arm is weak, and he tells me his right grip is getting weaker. He can still walk, talk, and eat. My caregiving role is currently...

my mom did the trach on last Friday. she was in ICU for 1.5days and transferred to PCU(progressive care unit). after few hours of her surgery, she started to bleed a lot so had to go back to surgery room to control the bleeding and to chech if everything is okay. next day of surgery, she was...