So glad I have found this group. I have some serious symptoms and questions about tests that I hope someone can answer for me. In April of 2017 I started falling for no reason. My knees would just buckle and down I would go. I fell at least once a week thmonth of April. Then I would go about...
We have a mix of ways that we have help. I thought I'd share them. I'd also be interested in hearing your ideas.
For reference, my Dad is mostly immobile now, (diagnosed the end of 2018.) All transfers are with a Hoyer lift. He does get transferred to a commode or his PWC, (mostly if we're...
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I've known in my heart that this was als.
1 year ago she and I were snowmobiling. Symptoms first started around June. She needs help getting into my truck now, has slurred speech. And can not swallow a pill, but she can't open the pill bottle anyhow.
We are referred to mass general.
I...
Hi all,
Just wanted to underline how grateful I am for this forum. This morning, Mum had her first really rattling experience with trouble breathing, a series of spasms that wouldn't allow her to get her breath. Because of how PALS and CALS share their experiences here, and I've been reading...
Hi all. Here's my story. Please let me know what you think. Thanks in advance.
I am 55 female. Started having finger, hand, and toe cramping at least 17 years ago. I also had body wide twitching. Was worried cuz I was due to have a kidney transplant surgery with general anesthesia and was...
Hello!
My heart goes out to anyone with this horrifying disease. Nobody deserves it.
I have read the sticky in this forum and have been unsure wether I should post, but my anxiety about this disease is severe. I figure I should seek the advice of people who actually have this disease and...
Hi,
I have read the stickies regarding ALS and I admire the commitment of everyone who takes the time to answer all the questions.
I am 63 years old male having retired from work last March and my general health is good, I have haemochromatosis (iron overload) which is well managed by my...
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My Pals started a downward spiral 30 days ago. Could no longer talk, appetite diminished, slept 14-15 hours at night and often a long nap in the afternoon. I asked twice if she wanted our granddaughters to come decorate for Christmas and never got a response. I had them cone out anyway and she...
Hello- I am a 29 year old male. for the last 5 years I have been experiencing twitching all over my body. Pretty much anywhere you can think of, including my tounge, has experienced twitching.
Starting about a year ago I noticed I was having seriously over emotional reactions to things. For...